Centers for Independent Living

Moving right along, promised you a page on the Center for Independent Living. Let’s do it!

As Virgil’s (sweet, lovable guide dog that he is) Mom was telling me, Centers for Independent Living (CIL) are pretty much all over in the United States. At Virtual CIL you can click a state and a list for that state appears. CIL does appear to be international at least on a small scale. I found one in Dublin, Ireland. Where else? No clue. My browser keeps routing me back to local offerings. Too much like work to try to find many more. Check under Center for Independent Living in your area.

Centers for Independent Living are often funded by government rehabilitation agencies. However, I was told they do have some discretionary funds to use with those who don’t qualify for government funding.

CIL offers peer counseling from people who have practical experience living with your disability. They also offer advocacy. Although they work to support legislation for disability rights and teach self-advocacy, they provide more practical support like helping clients get better transportation or housing as well.

Skill training is a big part of CIL according to the websites. They are reported to not only run educational programs to help people DIY but also to help find trustworthy and reliable caregivers and even financial advisers.

Under the heading of information and referral, they list a variety of things. It sounds as if they may have speakers. Referrals to specialists and suggestions for home modifications and adaptive equipment are likewise within their purview.

Other services? They have LIMITED funds to do basic structural modifications that will allow you to continue to live at home. We are talking things like lowering a section of counter if you are wheelchair bound, not renovating so you have a state of the art, gourmet kitchen.

CIL also offers an awareness program so young people and other, similarly ignorant folks can experience ‘having’ a disability. There is disability sensitivity training – although I daresay one of the camp kids I met had some of the BEST, semi tasteless blind jokes ever! – as well as Americans with Disability Act compliance training for employers and training for firefighters and other emergency responders on how to rescue us – and deal with us! – if need be.

It does sound as if Centers for Independent Living can be a good resource for us who need just a little extra support and knowledge to make it happen as VIPs (visually impaired persons). Of course, like everything in life, individual results may vary. There are dozens of these centers and I would suspect quality of services is not the same everywhere. What I know I learned from a CIL employee who is proud of the job she is doing and a web page or two. Go check it out and report back. Your experiences cannot help others unless you report them. Here is your forum.

written July 30th, 2017

Continue reading “Centers for Independent Living”

Worldwide Warriors

Some of this is a repeat of information I shared a few months back, but a little review is not a bad thing. I know we have readers in low and middle-income countries and I started to wonder about the state of things where these readers are.

Even though most of our readers are in the US, UK and Canada, we should not ignore people just because they don’t make up large numbers; right? Right!

Found the WHO site on vision and blindness. That is as in World Health Organization and not Doctor Who, although over the years I have been partial to Tom Baker and Matt Smith. Bless the BBC. But I digress AGAIN.

The World Health Organization says there are 285 million visually impaired in the world. 39 million of that number are blind. This is two million more than a population estimate I found for Tokyo. 90% of the world’s visually impaired live in low-income settings. 82% of the people with blindness are over age 50.

To repeat, most of the vision problems in the world could be solved with glasses. That’s 43% of that 285 million or….let me get the calculator, 122,550,025 needed pairs of glasses. Unoperated cataracts come in second at 33% and glaucoma comes in third at 2%. Age-related Macular degeneration comes in down the list.

WHO is in the coordination role for fighting world blindness. Among other initiatives WHO has partnered with Lions Club International to establish a global network of 45 childhood blindness centers in 35 countries. (Actually, the number may be greater than that because the article was written in 2014).

And talking about the Lions Club, the Lions Club doesn’t just dabble in vision support, they are into it up to their own eyeballs around the world. Need a vision hospital in Nepal? Try Butwal. The Lions are there. How about the state of Telengana in India? The Sunyaet Lions have their own hospital.( I think. I need work on my knowledge of Indian geography!) Kenya? SightFirst eye hospital is in Nairobi.

The Lions have dozens and dozens of sites, most of them in developing nations. If you are in need of sight services, contact the Lions Club. The chances are good you can find help.

And once again…is there hope? Are these warriors against blindness fighting a losing battle? In order, yep and nope. The battle is being won. In the last 20 years there has been a decrease in visual impairment worldwide. This is in spite of the aging of the population. The decrease has been primarily due to efforts to eradicate infections causing blindness but other efforts have bearing fruit as well.

So, there you go. WHO and the Lions Club may not own that all around wonder tool, a sonic screwdriver like Doctor Who, but they are still managing to do great things for people with vision loss. If you are living in a developing nations, WHO and the Lions Club may represent your hope.

written July 26th, 2017

Continue reading “Worldwide Warriors”

Our Neighbors in Canada

Hello, neighbor! This is a page for our Canadian friends. Or at least the first part is. I will see what kind of info I find to fill it up.

First of all, a topic near and dear to my heart: puppies! It appears the Canadian National Institute for the Blind (CNIB) is now in the guide dog business. They have started a program to train dogs and match them with appropriate folks. They are compiling a list of people who would like a dog as well as asking for puppy parents. They are looking for people in North Toronto, Markham and Newmarket as well as Halifax and Winnipeg.

Now, more power to you. I would make a good foster parent except for one small detail: I would not be able to give her up! That, and I am a soft touch. So that is two details. If you are capable of such generosity you can give up an animal for a good cause, maybe you should volunteer. They are, as I said, looking for volunteers. I, on the other hand, will demure.

CNIB runs a summer camp. It is just North of Toronto. I would love to say those of us with age-related eye diseases can go but it looks like, once again, it is for those pesky people called children. Could you please explain to me why they get all the fun?

FYI, I tried to get the people at the Penn State Summer Academy to say I could play, too. They were having none of it. Very discouraging for a 64 year old ‘kid’! I think we older folks need equal time!

Canada has the Center for Equitable Library Access. Although they work closely with CNIB CELA is not a subsidiary of CNIB. In Canada you can sign up at your public library or call 855-655-2273.

CNIB offers a Readasaurus Kit for preschoolers to get introduced to the joys of reading. Their site shows you how to make your own tactile books and gives you ideas for low vision activities for the little ones. Know any little people with visual impairment? I do and I think I will share this site with Mommy.

Another activity for the kiddos offered by CNIB is a Braille writing contest, with CASH prizes! I don’t think I know of any novels written initially in Braille but why not? Our lack of knowledge and imagination does not mean it cannot happen. Maybe it will happen in Canada.

Really being impressed by CNIB and its offerings. They have games they allow us big folks to play! They have an auditory version of Battleship and Sound Sudoku. They also have links to sites like The Able Gamers Foundation for video game play.

Like I said, impressed with what our cousins to the north have to offer. Some of it – websites for the educational materials and the games for examples – is available to everyone including non-Canadians. Be sure to check it out.

written July 23rd, 2017

Continue reading “Our Neighbors in Canada”