How Many Favors?

One of the problems with being a cockeyed optimist and a Pollyanna is I always expect good things and relatively easy sailing. When that doesn’t happen, frankly, I become perturbed. I HATE to be thwarted.

Last evening I started downloading Golden Prey (book by John Sandford) from BARD. It has stopped several times since then.

I think it has to do with too much in my iPad memory. My ability to clutter up my environment extends to technology and cyberspace!

Another case of “do as I say, not as I do”. Deleting books you have already listened to is fine. You can always get them again. FYI for you non-technical savvy folks, your devices will run faster if you do.

My schedule is changing for the summer and I have to figure that out. Transportation will only pick up until 7 pm. After that my coach turns into a pumpkin! (Of course, for some of the ‘lemons’ I have ridden in, that would be an improvement!)

I have been picking up signs a woman who has dutifully transported me up for the last 15 months has gotten tired of it and needs a break. Changing my schedule so that I can ride my bike at least some of the time and take up some of the rest of the slack with transportation should work. I also have a co-worker who has started to take some of the same classes and who has offered to haul me. Also another gym friend.

People truly are wonderful and generous but they are not saints. Problem becomes they hate to let you down and will keep on helping even when it is no longer convenient.

I am starting to think I need some sort of rotation system. I already try to limit how many times I impose in one week. I try to keep it under three rides – counting someplace and back as two – a week for any one person. Except my husband, of course. He drew the short straw when he married me!😜

Once again there needs to be some sort of etiquette book for this! Any ideas about the ride dilemma? How many favors for the old, visually impaired chick is too many?

Still haven’t got the new pool liner. Got that call at 7 am as the rain poured down.

And my frustration that you may actually care about….Aipoly, or at least the free version I downloaded, did not live up to its hype! My diet Pepsi bottle was “a wine bottle” (however, that is a thought!) and my glare glasses were “one string of headphones”. I got too close to my sandal when I took the photo so that was “a basket” although when I pulled back and tried again, Aipoly got it right.

Now, in all fairness, I am cheap. The word free can be music to my ears. There is an Aipoly version for slightly less than $5 per month. That one is supposed to be much ‘smarter’. Since I am cheap and not in need of such a service yet, and since I can never remember to cancel those damn ‘free’ trials, I’m not downloading it. If you are in need of such a service and can remember to cancel a free trial, try it and get back to us please.

Type at ya later! Continue reading “How Many Favors?”

Ratings

  • Rate this
  • Summary
Current Average Ratings
Overall quality
Avg: 5.00/5
Applies to topic
Avg: 5.00/5
Helpful to me
Avg: 5.00/5
How Many Favors?
Total Avg Rating: 5.00 out of 5 with based on 1 rating(s)
Overall quality
Applies to topic
Helpful to me

I Have Macular Degeneration…Now What?

If you aren’t familiar with how to move around on our website pages, click here

Where can I quickly find information about AMD?

One of the best resources available is from the Prevent Blindness organization’s website called Guide Me.  You answer a few questions and you will get a personalized guide with important aspects of AMD based on your answers.  Click here to go to Guide Me.

What other websites are helpful?

Here are some of our favorites:

  • Click here for a video that covers important information about AMD
  • Click here for a description of dry vs. wet AMD (we are not recommending any products in this article)
  • Click here for an article about depression after diagnosis (which is common)
  • Click here for some answers to common questions about depression after diagnosis
  • Click here for an article about how vision rehabilitation helps prevent long-term depression
  • Click here for a very comprehensive page about wet AMD
  • Click here for a very comprehensive page about dry AMD
  • Click here for an article about how fast AMD progresses
  • Click here for 10 questions to ask your doctor
  • Click here to find a support group
  • Click here to find out should I take the AREDS or AREDS2 supplements?
  • Click here read about the role of nutrition in AMD
  • Click here for eye healthy foods including a Healthy Vision Grocery List
  • Click here for a January 2017 scientific review article“Nutritional and Lifestyle Interventions for Age-Related Macular Degeneration: A Review”
  • Click here to find out what vision changes/symptoms to look for
  • Click here to find out about the people who can help you (what are the differences between the types of eye doctors, do I need to see a specialist, etc)
  • Click here for tips on how to make the most of the vision you have
  • Click here for a FAQ (Frequently Asked Questions) that answers a long list of questions such as ‘will resting help my eyes?’, ‘Can I see for myself if my retina or macula shows any signs of damage before I have symptoms?’, ‘why don’t new eye glasses help?’, ‘what is meant by degeneration?’, ‘is a macular hole the same as macular degeneration’, ‘I have had dry MD for years. Does this mean I’m going to get wet MD too?’, ‘No one else in my family has MD. Why did I get it?’, ‘can drusen be treated?’, ‘I have changes on the Amsler Grid, does this mean I have MD’, ‘I have Wet MD but my Doctor says there is nothing he can do or no treatment available. Why is this?’

Where can I do more research?

Of course you can do searches on the Internet – there is a LOT of information there.  We have done a lot of research and here’s how you can find it.

  • through Sue’s Journal Pages. Sue became visually impaired early in 2016.  She is a psychologist trained in Dialectic Behavior Therapy (DBT), a cognitive behavioral therapy, and she writes about how she is using it to help her cope with this vision loss.
  • on our Resource page where there are links to many sources of information such as what is AMD, what is Stargardt’s Disease, organizations and websites with useful information, support groups, videos, books & reading materials, where to find vision services, where to find financial help especially for injections, personal stories, the science stuff, clinical trials & research (and how you can become part of one,  online newsletters, symptoms, possible causes/contributing factors, treatments, coping, how to take care of yourself…and more!
  • and in the posts in News/Highlights blog

There are more ways to get information from our website

Search or select CategoryYou can actually do research ON OUR WEBSITE!  You can find things such as in which of Sue’s journal pages does she talk about depression, where can I get more information about sunglasses or vitamins, etc.  If you are using a computer, for example a laptop, you may have seen the search box plus words under Categories and words under Tags/Keywords on the right side of each page. If you use a tablet or smartphone & the screen isn’t wide enough, unfortunately you have to go all the way down to the end of each page to see these sections.

Do you want to know in which pages Sue talks about depression? You can type the word depression (you can also type multiple words) in the search box or select the word depression under Tags/Keywords and you’ll get all of her pages where she talks about it plus you will get any of the News/Highlights posts as well as any matches in the Resources/Links or News/Highlights pages, too. If you want to find everything on our site about sunglasses, you could type the word into the search box or look for the word under Tags/Keywords and select it.

Tags/KeywordsIf you want a broader range of pages & posts such as ‘Tips for living with low vision’, you’ll see that under Categories.

 

 

 

 

 Go back to the top

I’ve set up this page so that when you click on a link (words that are underlined & in blue or green), a NEW tab will open in your browser and this page STAYS WHERE IT IS.  When you are done with the new page you opened, just close it.  You do NOT need to use the back option.  If you click on a link and the new page replaces this one, I’VE MADE A MISTAKE so please let me know by sending me an email at light2sight5153@gmail.com.  Let me know exactly which link or links do not open a new tab or window.

Go back to the top

Linda & her dog Chase
Linda & her dog Chase

To find about more about me, about Sue, about our project, go to the menu at the top of the page for sections about each of those.

 

Ratings

  • Rate this
  • Summary
Current Average Ratings
Overall quality
Avg: 0/5
Applies to topic
Avg: 0/5
Helpful to me
Avg: 0/5
I Have Macular Degeneration…Now What?
Total Avg Rating: 0.00 out of 5 with based on 0 rating(s)
Overall quality
Applies to topic
Helpful to me

Toy Story, Again

My habilitation person came yesterday. I was hoping she would have my iPad so I would be one step closer to being able to work full-time but nothing was delivered. We are hoping it will all come in next week.

My habilitation person wants to load up the iPad before she gives it to me. She wants me to have something called the KNFB Reader. The KNFB Reader is recent technology (2014) for Apple and Android phones and tablets. My habilitation person says you can take a picture of any text and the KNFB Reader will read it to you. Sounds pretty cool.

The KNFB Reader is available for purchase in the Apple App Store. Again, not a recommendation and not making a cent on any kick backs. My habilitation person wants me to have one so I am getting one. Just want to let you know it exists and is available for $100.

Since we recognize the iPad shimmies all over the place when I am trying to read with it, we also talked iPad stands. Another option for an iPad stand would be the Just Stand V2e. This one looks very much like the one we talked about before.  Only this one is only $140. You know the drill: not a recommendation. Be aware it is an option. The end.

The habilitation lady did bring sun glasses. Or, more accurately, she brought glare glasses. We spent time running in and out of the house seeing which pair she had brought would reduce glare for me the most.

I could have had two pair. One would have been for inside. Never really thought of indoor sun glasses, or glare glasses but apparently there is a lot of glare inside too. Glare is bad business when you are trying to see with AMD. Anyway, could have had two pairs but the same pair worked best both indoors and out.

The frames on the glare glasses were not too awfully bad. Some of them looked like those black things that I refuse to wear because I have no intentions of looking like I am 107. However, there were several that were acceptable to the fashion conscious. They were also big enough to fit over eye glasses.

[Sue doesn’t have the glasses yet but when she does, she’ll take a photo of them for us to see.  In the meantime, click here for examples of glasses that reduce glare indoors and out.]

The habilitation person also helped me register for BARD. Again, registration for Talking Books is required before you are accepted to BARD. The BARD folks warned they screen each application individually before they accept you. They said it would be days but I got my approval in hours.

This time I am responsible for the lack of progress. I did not make up a password yet. The weather is nice and it is time to be outside. More later! Continue reading “Toy Story, Again”

Ratings

  • Rate this
  • Summary
Current Average Ratings
Overall quality
Avg: 0/5
Applies to topic
Avg: 0/5
Helpful to me
Avg: 0/5
Toy Story, Again
Total Avg Rating: 0.00 out of 5 with based on 0 rating(s)
Overall quality
Applies to topic
Helpful to me

Do You Speak Technogeek?

Hello. Another thing I learned from the massage therapist was there are free apps out there that will identify colors. Remember that one of the things that you lose with AMD is good color perception. I downloaded one of the color identification apps for free from the Apple App Store.

Once more, free is good and I would encourage you or someone you ask for assistance to go looking in the App Store. They do have all sorts of good stuff, a lot of it for free.

The color identification app I found is called Color ID Free from GreenGar Studios (for both iPhone and iPad; it’s also available for Android). The Apple App Store has at least two other color identification apps on the same page. One costs $.99 and the other one costs $4.99. You can try them out if you wish. Perhaps one might give better results than the free one. Right now, however, I am staying with free.

The Color ID app I downloaded has two settings. One of them is simple colors and the other is exotic colors. Before I realized there were two setting I was sort of perplexed. What colors are potter’s clay and mongoose?

I have to admit some of the simple colors were also a bit much. For example a piece of yellow tablet paper was said to be grayish greenish-yellow!

You can set the Color ID Free app for simple colors or exotic colors.

Another thing I discovered in the Apple App Store was an app that took me to the AccessWorld web pages. According to the description AccessWorld is an online magazine from the American Foundation for the Blind dedicated to technology for people with low vision. It looks to be a Consumer Report for people searching for low vision aids. They also provide independent evaluations of products.

AccessWorld webpages, provided by the American Foundation for the Blind, are dedicated to technology for people with low vision.

Initially as I was looking at some of the articles, I got the impression the site is good for technogeeks with deep pockets. However, as I continued to browse I discovered this impression was not accurate. There is an article on how to use the features already in the Mac Yosemite OS (operating system) to assist the visually impaired. The article was a little heavy on the tech for me. OK, I admit it; most anything tech is dense for me or perhaps I am the one who is dense. The point is I already own a Mac with the Yosemite OS so all I need to do is bother a technogeek and I can get Voice Over and other options activated. The ‘machinery’ is already in the system and AccessWorld tells me how to access it…..if I speak geek. After all, AccessWorld does advertise as a technology site.

There’s an article for those with a Mac to help get VoiceOver and other options that came with the Mac.

I also found an AFB’s AccessWorld review of Be My Eyes. That is also a free app in the Apple App Store. This app uses a video link to a live volunteer to help you read stuff and find stuff.

At first I was a little nervous about downloading it but the AccessWorld review was promising. The product reviewer had used the system and after a few initial glitches it had worked well. The reviewer had, for example, had some poor soul in California helping him grid search the backyard for something that had blown off the deck.

This post is getting a little long, but I want to add one more paragraph. The Be My Eyes software was developed in Denmark (great country but really expensive. If it wasn’t for the cost, it would be a place to look if I ever ran away from home…but I digress). The developer thought he had a great idea but thought he might not be able to get enough sighted volunteers.

How wrong he was ! There were over 40,000 (maybe 60,000. I just had a memory lapse on the number) and they were complaining they were not getting enough opportunities to help!

You’re right. That was two paragraphs and this is the third. I lied. Cannot vouch for Be My Eyes because I have never tried it but AccessWorld liked it.

Try the Be My Eyes app and let me know. It might be sort of cool having 40, or was it 60, thousand people waiting to serve you😇

Continue reading “Do You Speak Technogeek?”

Ratings

  • Rate this
  • Summary
Current Average Ratings
Overall quality
Avg: 0/5
Applies to topic
Avg: 0/5
Helpful to me
Avg: 0/5
Do You Speak Technogeek?
Total Avg Rating: 0.00 out of 5 with based on 0 rating(s)
Overall quality
Applies to topic
Helpful to me

Welcome!

You are here to follow the journey & misadventures of a woman named Sue who became visually impaired with Age-Related Macular Degeneration (AMD or ARMD) seemingly overnight.   Join in the tears and laughter. Join in the discussion. Learn more about Age-Related Macular Degeneration. Find resources for your own journey or that of someone you know.

We’re going on a bear hunt….can’t go over it, can’t go under it, got to go through it.

Sue is a psychologist trained in Dialectic Behavior Therapy (DBT) and is using it to help her cope with this vision loss. Her trusted and invaluable friends bring computer, research and occupational therapy skills to this endeavor. Yeah team! We hope you benefit from the fruits of our labors.

We are not offering free psychological therapy.  We are not medical people.   Please read the disclaimer.

This website is divided into 4 parts:

  1. If you have just been diagnosed or if you are beginning your research, here’s a place to start in I Have Macular Degeneration…Now What?
  2. Sue’s journal pages which are like chapters in a book
  3. Highlights & News which are basically blog posts
  4. Links to helpful resources (still under construction)

For those of you who aren’t familiar with websites or blogs like this, to ensure that you will be notified when information is added to the website, you must subscribe by email.  On a laptop & most tablets, you’ll find the place where you can do this in the right-hand column.  On a smart phone, you will find it below the content for the page that you are looking at.

We are still learning, we don’t know everything about this awful disease.

Thanks!

Thanks to Lesley B., Sally R., Dave M. and Gerry M. for going through the website looking for links that didn’t work, things that didn’t read well and typos.  We couldn’t have done it without you.

Ratings

  • Rate this
  • Summary
Current Average Ratings
Overall quality
Avg: 5.00/5
Applies to topic
Avg: 5.00/5
Helpful to me
Avg: 5.00/5
Welcome!
Total Avg Rating: 5.00 out of 5 with based on 1 rating(s)
Overall quality
Applies to topic
Helpful to me