Linda here: One year ago today I published the first page from our website (the Facebook group started in May). There would be no reason to do what we do if it weren’t for the people who subscribe to our email updates and who are members of the Facebook group. I asked our very first website subscriber to share her experience. She’s an active member of our Facebook group as well.
Thanks for your continued support, Sharon Hynes!
Hello Everyone, I am a faithful follower of the website and of this amazing group and with the one year anniversary approaching of its inception, I would like to take this moment to recognize the contributions of the founders, Linda and Sue. Through their direction, this truly has become an interactive forum where every member has the opportunity to voice opinions, share stories and offer valuable information. Everyday people from many cities and countries ask Linda questions, knowing she will do her best to provide us with the latest research available. Then let the discussions begin! Informative, fun and yes, sometimes a few tears.
Sue’s inspirational stories are heart warming, such as her determination returning to work and travel after vision loss, certainly encouraging to others attempting to do the same.
I have learned so much in one year! The right foods to eat, vitamins, lighting, apps for my iPad, the importance of exercise, genetic testing, educational videos…..just to name a few. The home page is a wealth of information and easily accessible. Honestly, I have found no other site like it.
Four years ago I received my diagnosis. I was 58 years old working as a nurse in the ER and considered myself healthy but something was not quite right with my eyesight especially on cloudy days or at night. I was immediately shocked and humbled when I heard the words, ‘Macular Degeneration’. I am the type of person who likes having control and being prepared. Well, there is little control with dry AMD but through this site I have learned to be pro active with positive daily choices. In am presently in the early to intermediate stage of dry AMD with thinning retina edges exposing me to possible detachments.
There is still uncertainty as was four years ago, but I am no longer afraid. I first began with this group simply as a way of researching my questions but after one year, I must confess I stay because of the human spirit that is felt between the words.