macular degeneration, macular, diagnosis In the Groove – My Macular Degeneration Journey/Journal

In the Groove

Back again. Doing the getting back into the groove thing. The after vacation “who the hell am I and what the hell was I doing two weeks ago?” routine. There is laundry in the machines and I just called for my rides to work for the week. Sent a text to my ride for hip hop tonight. Remind people I am here and need some help again.

Not the same as it was last year after vacation. Last year I just got into the car and showed up on my own. That was a lot easier.

Today I have the morning off to regroup. A little after noon I get picked up to go and testify in that silly suit against my yoga instructor. That has dragged out for more than a year. The ‘swift’ pace of the American justice system at its finest.

I do not expect the ‘vision thing’ to have any bearing on my testimony. However, I have to be my own best advocate so if there is a problem, I will speak up. The judge is a good guy. Maybe we should research a little on the accommodations afforded the visually impaired involved with the legal system.  Life always manages to provide page topics but I would still appreciate any ideas you folks have.

I got an email from the local ski club. I signed up years ago but never got involved with them. Now I need them. My diabolical, little mind is working on how to use that contact to get to the slopes this winter. That makes me feel a bit guilty. I am not sure it is quite fair to ‘cozy up’ to people only when they have something you need.

I keep going back to being told people like to help. I also keep going back to I really want to ski!

I also have to do my Machiavelli routine with the people involved with the clinical trials. When I emailed ‘my’ researcher I got an automatic response back. She no longer works there! Crap! I called for another contact and got what my parents would have called the bum’s rush. Don’t call us. We will call you. The woman obviously did not understand whom she was speaking to!? This is your prima lab rat candidate here!

I have appointments with my local doctors in October. I plan on asking for a third referral to Regillo so I can once again be referred to the study. That will be referral number 3 to the study. Third time is the charm?

Like I said, sometimes I feel a bit guilty being so manipulative. Other times I just wonder why I need to jump through so many hoops when the results are just going to be the same. I sort of identity with the Borg: resistance is futile! Work with me here. It will be a lot easier on all of us?.

Next: Face to Face

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