macular degeneration, macular, diagnosis Resistance Is Futile – My Macular Degeneration Journey/Journal

Resistance Is Futile

Sometimes I think it is a sin ‘mature’ folks – those of us of a certain age, as it were – have to jump through all the government, medical and otherwise hoops we have to jump through and other times I believe it is only the older people who have developed enough social skills and understanding to actually navigate this mess!

Case in point, the transit company had me going to school instead of the office today. The scheduler argued I had told her wrong. There was no way to prove who said what, so I just capitulated. I am not fighting a “he said – she said” battle at 6 am. Never had these problems when I drove myself! May have tried fighting with her when I was younger.

Now I take a page from the Borg – you Star Trek fans remember “Resistance is futile”. Better to hunker down and prepare for the next time.

I also continue to navigate the straits and narrows of the research organization. Having no pilot to tell me where the sand bars are, I have been pretty uneasy about getting hung up by some wrong move or wrong word.

After my friend accused me of lack of motivation, she made me promise to try calling the pharmaceutical company and see if they could shed some light on this. Fat chance. I get so tired of being given the bum’s rush by receptionist types! I am not a bum!

Since the receptionist chickie (sounded about 22) kept saying I should talk to the research facility people, I decided to set up another appointment with Regillo. This will be #3, guys.

Stubbornness can be a virtue. When it is, it uses the pseudonym persistence. I guess Someone decided to reward me because after chatting amiably with the (older than a chickie) receptionist there, I got transferred to a researcher at a different facility.

According to this lovely lady, the second study has run the first batch of subjects and is now monitoring them. The second batch goes in the early Spring. Asked who decides who gets into that second batch, she threw Regillo under the bus – metaphorically speaking, of course. My target will have to be Regillo. He is my gatekeeper.

Target identified. Phasers locked on. I now need to convince the man to move me up the list. Sigh. Never knew this lab rat business could be such hard work. And I am not even in the study yet!

A couple of secondary gains were these: I asked the researcher at the other facility to remember me if she does any dry AMD work (doing wet now) and she put the conversation in my record. A couple of hours later I got an email with an ‘official’ update. Maybe showing interest in another researcher was a good plan? Make whom you are really interested in a little less complacent?

So that is the update. Regillo in two weeks. I am thinking this may be my second level job interview. Wish me luck!

Next: Be Safe

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