macular degeneration, macular, diagnosis Salmagundi – My Macular Degeneration Journey/Journal

Salmagundi

This thing is another salmagundi, which is a word for a mixed up affair. I am trying to find synonyms. Improve your word power. Reader’s Digest would be proud!

Going back in time…another reason I miss my car: it had a nice size hatch space and I kept a lot of work materials back there. I just spent a good half an hour looking for a test I have not used in a while. Looked three places.

If I still had the Psychmobile, I would have only had to look one place. Acceptance and change. What a pain they can be.

Fell asleep and napped early last evening. That meant I was awake at midnight. There was a screech owl calling his little heart out somewhere close. I have heard barred owls, too. They remind me not only that I love the out-of-doors but that I have other senses to enjoy it with. Listen. They are out there.

And really going off course, you should get a load of the flock of starlings that has taken up residence in our trees. There are thousands of them! It took nearly two minutes for the flock to pass the window. As my husband said: it was positively Hitchcockian! ??

Trying to get back on track here….

Before listening to the owl, I was reading the informed consent for the new study I am pursuing. Poor researchers. They might be getting an idea what they are in for. I am nothing if I am not persistent.

When I was a kid, my mother would tell me to do what I wanted because I would find a way to do it anyway.

Anyway, the study. It is listed in clinical trials online. The number is NCT 02659098. Take a look at it. The first study I was interested in – and am still interested in as plan B – required weeks of immunosuppressants and a vitrectomy. This one requires neither. It sounds less invasive and as if it won’t have such a potential impact on my health. Those are good things. It also will require involvement in the study for a longer time but fewer visits into Philly. That is also a good thing.

Another thing I noticed? While the other study was measuring the effectiveness of the immunosuppressants they were using, this one has outcome goals of visual acuity and reading speed. In other words, they are going for stuff that really matters to your ever lovin’ truly.

What they are also looking at is how well a new delivery system will work. What I found was – I think – the patent and that was in engineering-ese. I understood about every third word, ‘the’, ‘a’, ‘and’. Words like that. Lin is trying to find something that will actually say something we can make sense out of. I would like to see what the delivery system is all about. [Lin/Linda here: I cannot find out anything about the specific delivery system.  There is a study going on now that is testing it.]

So there you have it for this page. Going off in a new direct but still the cockeyed optimist about this whole mess. There will be answers.

Next: Song of the Lark

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