Sue’s Musings: Then and Now – Part 1 – 1/18/2018

February 25th is the 2 year anniversary of our website.  During these 2 years, Sue has written over 500 journal pages and there have been over 600 posts!  We have been busy, haven’t we? ::smile::

With all that content, we know it is hard to know where to start if you’ve not been following from the beginning.  In honor of our anniversary, from now until February 25th, I am going though the journal pages and highlighting some of Sue’s words to help you find pages that you want to read.  There may not be a post in this series each day.

From Feb. 25th, 2016 to Feb. 29th, 2016
  • “I am going blind. I’m terrified.”
  • “What my sweet, wonderful ophthalmologist did not tell me was how to cure what ails me. In fact, he told me there was no cure–well, ain’t that just dandy? ”
  • ” When somebody suddenly realized what the numbers were going to look like, they decided they had better do something to ameliorate the problem. Thus, all the research.”
  • “Carl Regillo is at Wills Eye Hospital in Philadelphia & has an office in Bethlehem, perhaps 2 hours away. And I got an appointment within 3 weeks of asking & they took my insurance. So far, it does not get any better than this.”
  • “If you’re reading this website just because you have nothing better to do or out of curiosity, if you do not yet have a diagnosis of retinal disease and you become blind after coming in from bright light with long periods of recovery, get thyself to a reputable eye doctor. It is very possible you have the beginnings of a retinal disease. That’s the public service announcement.”
  • “I was waking up to three times a night in a state of pure terror. It was this internal alarm system that made me make an emergency appointment with my ophthalmologist.’
  • “Screaming and crying, frustration and disgust have been part of my life recently and I suspect they will continue to visit. The skills may not be 100% effective but I will take all of the help I can get at this point.” * This is a great introduction to the Cognitive Behavior Therapy that Sue, as a psychologist, is using on herself.
  • “So, for one hour, I acted as if all was right in my world. I dressed up. I danced. I laughed. And for that hour I felt better.”
  • “Meeting with my BVS (Blindness & Visual Services) counselor, I signed the usual mess of legal forms and found out I was going to get three different services. One would be low vision support, one would be technology and one would be ‘habilitation services’…whatever that is.”
  • “I have become the ‘out to lunch lady’. OK, those of you who know me know I have always been a bit ‘out to lunch’, but these times I am actually eating. People are taking me to lunch and getting me OUT.”

written Jan. 18th, 2018

Next: Sue’s Musings: Then and Now – Part 2 – 1/20/2018

 

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Sue’s Musings: Then and Now – Part 1 – 1/18/2018
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