macular degeneration, macular, diagnosis Third Chakra – My Macular Degeneration Journey/Journal

Third Chakra

It seems to be motivation week. The BARD book I was able to find by the second author my nephew suggested is entitled “Drive: The Surprising Truth About What Motivates Us” (No clue. I have not downloaded it yet; it’s also available on amazon.com) Then in yoga my yogini had us concentrating on the third chakra. The third chakra is said to be concerned with a sense of purpose and self-motivation. OK. THEN I was accused of lacking motivation in seeking treatment for my AMD! Really?

I sort of get it. How many diseases can you think of that not only have no cure but no real treatment? (Wear your sunglasses and take your vitamins???? What kind of treatments are they? Where are the pills? The funny machines?)

If people cannot fathom there really is no treatment, how can they understand we are not getting treatment? Not going for treatment? Just obviously unmotivated, we are.

And then you tell them you have been waiting for over a year to get into a clinical trial and they really think you are crazy. Why have you waited that long? You just march right in there and tell them you are going to be included in this! Why aren’t you motivated to get this taken care of?

So, perhaps I have not been forceful enough.  Perhaps they just have not noticed me and they are gathering up more motivated candidates. Perhaps I have my approach all wrong.

I have been asking around and doing my research. I have a fellow yogini who works at a research hospital. Totally unrelated body part, but the ways research progresses should have parallels; right?  She is going to ask about the flow of these things. Are their trial subjects more aggressive? Does it take those researchers forever to get their stuff together and get it on the road? Inquiring minds and all that.

I also went onto that purveyor of all things known, the web and particularly Wikipedia, and looked up recruiting for clinical trials. According to dear, old wiki, the recruiting business is a billion dollar venture. Recruiting is the most time-consuming aspect of research and is responsible for the failure to meet many, many clinical trial deadlines.

All of which begs the question: why are they not calling me? I am certainly not playing hard to get!

All the other materials I turned up on clinical trial recruiting were of the same variety. Those articles talked about the problems finding people who are willing, able and appropriate for participation. While I feel their pain, my problem is the opposite. I want to understand why no one is calling me. Is there a handbook for this somewhere? What is proper etiquette for seeking a position as a lab rat? I have NEVER had this much trouble landing a job!

So, no, I am not unmotivated.  My third chakra is working just fine; thank you. I am playing a game to which I do not know the rules and I am afraid of pushing too hard. People don’t pick shrinking violets but they don’t pick prickly people either. Anybody own an old rule book for this stuff? I could use a little guidance.

Next: Life Is Like An Ice Cream Cone

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