macular degeneration, macular, diagnosis My Uneventful Life – My Macular Degeneration Journey/Journal

My Uneventful Life

Greetings from my busy but essentially uneventful life. In real-time it has been about five days since I have written anything. Nothing is happening. No one has peeved me off. Nothing in the research has reached out to ‘grab’ me. Nothing much going on.

Thinking about needing to write something, I started looking at what I have been doing. I am still working pretty much full-time. I am still exercising, walking the Beastie Baby – albeit a lot slower as she is closing in on 14! – and avoiding housework until it approaches critical mass (or critical mess, if you prefer!) I am also riding my bike a little bit and I have been ‘reading’ recent offerings from two of my favorite authors.

Looking at my mental inventory I realized I have been making gains on being myself. I have been getting back to being me!

My first year or so was a scramble. I was working with people to put all of my supports in place and learning to use same. I popped the big pieces back in place first. I got back to work and found a way to continue my exercise. I also added a new piece or two. For example, I started writing these pages and Lin put together the website and the Facebook group. Now it appears I might be putting in some of the smaller pieces, navigating in town on my bike and indulging in murder mysteries.

The research Londoners’ Experiences of Life-changing Injuries chronicles the thoughts and feelings of some who have experienced brain injury, but a lot of the thoughts would apply to the loss of any physical ability. Your self has, to some extent, been dismantled. Picking up the still usable pieces, adding the changes to those, and being alright with the picture created can be a challenge. Still, most people want to get back to a semblance of ‘normal’. They want to get back as close to being themselves as possible.

Totally possible? Probably not. Everything does not always go back together the same way. But that does not mean you should not try to get back to being as close to ‘normal’ as possible.

Right now I am adding back riding my bike and listening to Michael Connelly and John Sanford novels. What else might I add? Not sure yet. The Spring/Summer season is still young. Many summers I have taken day trips. Thinking about the logistics behind accomplishing one or two of those.

So there you are. Pretty basic life. Working, exercising, pedaling my bike around town and listening to mystery novels. Big deal? Actually, it kinda is.
P.S. Just finished The Crossing and The Escape Clause. Love Harry Bosch and Virgil Flowers!

April 23rd, 2017

Next: Playing Clue

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