macular degeneration, macular, diagnosis Sue’s Musings: Then and Now – Part 4 Revisited 2018 – My Macular Degeneration Journey/Journal

Sue’s Musings: Then and Now – Part 4 Revisited 2018

From April 3rd to April 13th, 2016
  • “Effective communication means that communication with people who have communication disabilities – including trouble reading standard print – is to be as effective as communication with persons who do not have disabilities.”
  • “And the take away message from all of this? I guess for me it is, keep your old friends but keep reaching out, too. Check out both local and online support groups. Walk up and start a conversation with the person with the white cane. Open those lines of communication. Push back against the isolation. If not you, then who?”
  • “Try the Be My Eyes app and let me know. It might be sort of cool having 40, or was it 60, thousand people waiting to serve you?”
  • “Bottom line is I am  not able to do a lot of things the way I used to, the way they ‘should’ be done. I could cry over not being able to do things ‘properly’ or I could get ‘er done in a way that will get me to my goal.”
  • “And, yes, this living with vision loss is time consuming. It is getting a little better but every time I try to cut corners I make a mistake and have to spend more time correcting it.”
  • “So, still just trying to move along this low vision path. I get discouraged. Just the same, accepting the problems and trying to deal with things as they come along seems better than the alternatives.”
  • “I may have said this before, acceptance does not mean approval. I would not be screaming to get into that clinical trial if I approved of going blind. No approval from this girl! But I want to be in the game, so I accept what keeps me there.”
  • “My analogy for this problem is simple. Your mind/attention is a puppy. In order to train this puppy you will require a lot of patience. You will put that puppy back on the paper what seems like 100 times a day. You have to keep at it and eventually you will succeed.”
  • “Breath meditation can be done with square breathing. In to a slow count of four. Hold for a slow count of four. Out for a slow count of four. Hold for a slow four. Concentrate on the sensations. Feel the air going in your nose. Feel your lungs expand. Listen to your breath.”
  • “Another thing I did to get what was right was be respectful and appreciative. By being respectful and appreciative, I set things up so the people helping me felt good about helping me. It became a win win situation. No one loses in a situation like that.”

compiled Jan. 21st, 2018

COMING SOON: MORE OF SUE’S MUSINGS