Sue’s mother, like others in her generation, never thought to question their family doctor; for Sue and family that was Elmo. Sue became a ‘horrible’ patient and writes “My favorite questions to any doctor are ‘Why?’ and ‘Explain that to me.’ ” Shared decision making in medicine is popular now because it empowers & educates patients. Sue writes that her questioning would…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
My Macular Degeneration Journal 