Author: Linda Moore

Sue’s ‘Lost’ Pages are ones that for various reasons never got published, they slipped between the cracks.

The child of a friend of Sue’s has a malformation of the optic nerve. They don’t yet know what she sees since she is still young.  She’s a handful now which Sue attributes to ego strength, something that will be helping this child in…

Taking the World by Storm

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

I’m reposing this from December 2016.

The countdown to Christmas is in full swing.  It can be a happy time but it can come with issues.  Sue writes “Surviving the holidays can be rough for anyone but it can be harder for us folks with ‘challenges’. ”  Through it all we should…

Accentuate the Positive

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

 

I’m reposting this from 11/20/2016.

This Thursday in the US is Thanksgiving Day which many people consider to be the beginning of the holiday season. For some people, the holidays are not times of joy and happiness.  Sue talks about some of the myths that may behind some of the reasons and she offers some ideas to combat…

The Holiday Blues

People with vision impairment have a particular set of challenges but there are also ‘normal’, mundane problems that aren’t related.  Those of you who have been following Sue’s journey know that not long ago Sue’s furkid Beastie Baby/Lily passed away.   Sue is now facing the ‘normal’ challenges of becoming a puppy mother because this past weekend, she got not 1 but 2…

New Puppies!

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s post-vacation days have included  a bout of a stomach bug and tons of work.   She had  a client with a physical impairment and told them “We each play the cards we are dealt. They may not be a winning hand, but if we play that hand with skill, we can still win in our own way. ”

Play the Cards We Are Dealt

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s back from her vacation and back to looking at what’s new in AMD research.  Unfortunately, some of that news is not good (Lampalizumab study).  Other news is more hopeful.  It’s back to “normal” now that she is…

Home Again

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue watched as the Coast Guard responded to a medical emergency on her cruise ship and was proud of what she saw.  Even though her vision loss caused her to miss some things, she writes “If you have the time, money and inclination to cruise, don’t let a little vision loss hold you back.”

Postcard from the Cruise Part 1

Sue was able to be mostly independent on the ship after she learned the routes to the various decks.  There were times when it was hard for her to find her husband so they worked out a system to deal with that.  All in all, she concludes that the trip was good.

Postcard from the Cruise Part 2

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Did I have too much Halloween candy last night?  Not enough coffee?  Have the frigid temperatures frozen my brain?  Who knows but I’m sorry, the previous post had a ‘bad link’ so if you have clicked on “Yeah Team!” you got ‘page not found’!  This one will work, at least I hope it will ::grin::

Sue is a confident person but she does get nervous when she knows that people depend on her.  She’s been asked to participate in a project as second in charge and she accepted with the understanding that if her vision worsens, she may not be able to continue.  So let’s offer a…

Yeah Team!

Sue & her husband are on a cruise, a trip that she set up faster than normal so she didn’t have a lot of time to do research.  So while she’s sunning on the top deck of the ship (wearing her good sunglasses, of course), you can read about cruises for those with visual impairments. ::smile::

Cruisin’

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Another phishing attempt did not ‘catch’ Sue and she shares tips with us so we don’t get caught.  She also talks about optimism and shares thoughts from Dan Roberts “Roberts emphasized there being so much reason for optimism with all the tools and medical breakthroughs.” Sue says “Know someone without knowledge? Someone without hope? Give him…

Some of Yours

I thought that Sue was already on her way to her vacation when I got this page with information from two more articles! ::smile::  This is Sue saying “Two more things…

Before I Go

** It may be a few days before there are new posts.  Sue is on vacation and I’m having surgery tomorrow Nov. 3rd and will need some recuperation time.  I’ll be back as soon as I can.  Sue will be back on November 12th, 2017.

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

 

 

Did you know that there are…

Three Types of Wet AMD

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.