Sue’s written quite a bit about the role of retinal pigment epithelial (RPE) cells in the development and progression of AMD. She clarifies that RPEs are not just in the macula, she writes “RPEs are under all of the photoreceptors and support all vision, not just central vision.” That means that RPEs are…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Those of you with wet AMD – especially those of you who are getting injections of anti-VEGF medications – are praying for the time when you will not need them or you will not need them as often. When the research on a topical treatment ‘failed’ (Squalamine eye drops used with Lucentis injections to reduce the frequency of injections), the news was disappointing. However, as with many studies, there was a secondary goal which was to improve visual acuity. About that, Sue writes that “31% of the people with ‘classic’ wet AMD lesions gained 11 letters on the chart!” She says…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
We’ve had several people ask how Sue can produce so many pages for the website (almost 500!) as well as prepare written reports for her various jobs. She has geographic atrophy which is the advanced stage of dry AMD which means she has scotomas/blind spots in the central vision of both eyes. She writes about her process which has produced some funny autocorrect and speech recognition interpretations such as ‘a broken ankle’ becoming a…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue’s written several pages about atrophy that can occur in the periphery. She says “Can’t change your genes just yet at any rate. Cannot get any younger. That leaves taking care of your circulatory system. Do what you can to improve it.” We hope you will also take this advice…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue continues to dig through the article about geographic atrophy. Would you want to know where the atrophy will spread? There’s a test for that and tests for wet AMD and a test for dark adaptation.
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue has written several pages about an article that details what is known about geographic atrophy which is the advanced form of dry AMD. She writes that with all these terms & details she feels like she is falling…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
There are so many ways that tension impacts our lives, not the least of which is through the fear or reality of sight loss. Sue shares specific ways to…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
We’ve read so many articles about peripheral retinal atrophy & related disorders that we are swimming in confusing information! Sue writes “I have more than enough to worry about with my macular degeneration and I expect you do too. I am not going to buy trouble. I could waste every minute of every day worrying about a bunch of what-ifs. I have better things to do with my time. I suspect you do, too.” We advise you to take former Beatle Paul McCartney’s advice to…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
We’ve talked about drusen but we’re also reading about something called pseudodrusen. What is it and why do we care? When we talk about vision with early AMD, what’s the difference between visual acuity (eg, 20/20) and functional vision? Here we go with more articles that we are…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
She’s back with the first of a series of pages on something that her retinologist told her. She takes a detour through Panda Pop and the Rocky Horror Picture Show but she ends the page with an article that says there’s a connection between prostate cancer and AMD so the page is…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
My Macular Degeneration Journal 