Sue’s New Pages 9/15/2017

When someone is diagnosed with macular degeneration, many people fear that they eventually won’t be able to do the things they enjoy.  We’ll be talking about some of these things.  First, it is…

Time to Watch Some TV

Sue asks the question: Can people still be happy after vision loss?  She says “…happiness is limited because we allow vision loss to rid us of dreams and things to look forward to.”

Anticipation

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/14/2017

There are many things that are annoying when one’s vision is impaired.  Here’s one…

Did You Drop Something?

We know that many of you are trying to conceal your vision impairment from co-workers, friends, family.  Are there ways of…

Fading Into the Woodwork

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/13/2017

What does the term ‘bucket list’ mean to you?  Things to do before you die? Sue talks about having at least two of them:  one for the things you need to do to get through the day and the second for the dreams that you have.

Bucket Lists

Age-Related Macular Degeneration (AMD) is not the only disease of the macula, we know that some of you have a disease commonly called…

MacTel

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/12/2017

It used to be that the Amsler Grid was the only way to monitor your vision.  Sue talks about the other ways to…

Keep an Eye on Your Eyes

It’s hard enough for people with ‘normal’ vision to read the small print on a medication bottle, what do you do if your vision is impaired?  There are ways to help in…

Managing Medications

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/11/2017

Lin/Linda here:  I am having difficulties with the software I use to maintain the website.  I will be sending a few posts from days past that I do not think went out.  Sorry for filling up your inbox!

Sue’s transportation system continues to schedule her with lots of time to spare some days.  This day it started a mini pity party for her along with the not-so-good news that one of the 2 parallel clinical trials of lampalizumab didn’t meet its primary endpoint for the 1st of the 2 trials.  Unfortunately, both Sue & the research hit some…

Bad Patches

On the plus side, Sue found a review article that highlights the…

Recent Advances in AMD

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

 

Sue’s New Pages 9/10/2017

Sue admits that her life is cluttered.  Things like doing laundry and ironing bring challenges for those with visual impairment.  Sue offers suggestions for…

Fighting the Mess

There’s conflicting information about whether there’s a relationship between cataracts and AMD.  They are both diseases where the risk increases with age.  Read more about…

Cataracts and AMD

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/9/2017

When Sue was at the Summer Academy, several people talked to her about a way to navigate that’s better than Google Maps.  It’s called…

BlindSquare App

As we get older, some of our senses decline including that of taste.  Sue has some hints to…

Put the Savor Back in Life

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/8/2017

Lin/Linda here:  I am having difficulties with the software I use to maintain the website.  I will be sending a few posts from days past that I do not think went out.  Sorry for filling up your inbox!

ATM stands for Automated Teller Machine.  They’re not easy to use if you can’t read the small screen which is usually subject to glare.  Luckily, many of the new ones have a jack for headphones so it’s almost like…

Talking to Your ATM

We know that what you want to hear about is what research is going to give you in your lifetime.  But every once in a while something cool comes along like taking zebrafish genes and inserting them into mice for…

The Proper Magic Potion

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/7/2017

Lin/Linda here:  I am having difficulties with the software I use to maintain the website.  I will be sending a few posts from days past that I do not think went out.  Sorry for filling up your inbox!

Sue continued her adventure by taking a bus back home after her participation in the Summer Academy at Penn State.  Did she enjoy it? No, but she would do it again if she had to.

Take the Bus

While at the Summer Academy, Sue talked to someone who gave her information about…

Centers for Independent Living

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s New Pages 9/6/2017

Sue was invited to participate in The Summer Academy at Penn State University which was sponsored by the Pennsylvania Office of Vocational Rehabilitation.  This was for visually impaired kids.  This was her first ‘adventure’ away by herself to do her…

Personal Appearance: Part 1

After the closing ceremony, Sue decided to set off by herself to explore.

Personal Appearance: Part 2

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.