Things have piled up for Sue. Her scotoma is getting denser, it’s been rainy and she’s sleepy, and her shared ride transportation continues to waste her time. It all adds up to…
Sue talks about 3 ways to magnify and move images to the healthy part of one’s retina, each with varying price tags. None of them halt the progression of the disease so…
Can you really accept being a visually impaired person? How? Sue tells us “Every day we accept a little more of our new identity and the ways we now have to live our lives. It is an incremental thing.” Here’s one tool to help…
I’ve told Sue that I am constantly amazed when after 18 months of research we learn something new. Sue’s been looking for information about how much she can expect her scotomas (blind spots) to progress. We’ve learned more about how doctors can follow disease progression including what it means when they see this on a particular test…
Sue has times when she feels sorry for herself. That’s normal when one’s vision loss impacts daily life. In this page, she says “We all have our setbacks. We just cannot wallow too long. Sometimes it is time for an…
Many of us have floaters which are not symptoms of AMD. How do we know when they are ‘normal’ and when you should have them checked out? If all else fails, consider them…
No matter how much we learn, we are always finding new information. Sue found an article that talks about the fovea, drusen, geographic atrophy, and what happens if wet AMD is not treated.
There’s more in this article including terms like PED. Did you know that there are different forms of wet AMD?
A year after her worsening vision caused Sue to take a break from what WAS her normal life, she realizes that now she’s writing about…
We’ve discovered that getting answers to questions about what happens when AMD progresses isn’t always easy. Sue has found that she’s not the only one who thinks that figuring all this out is like…
When Sue wrote this, it was a little over a year after her vision changed such that she had to take a break from doing some of the things she loved to do. It was hard to give up some of her freedoms but she was able to get most of them back. She talks about one of them on a…
Sue loves quotes, here’s one of her favorites from Victor Frankl: “The way in which a man accepts his fate and all the suffering it entails, the way in which he takes up his cross, gives him ample opportunity – under even the most difficult circumstances to add a deeper meaning to his life.”
One of our readers who is a member of our Facebook group shared her preparation for and experience of driving after not driving for 3 years because of the visual problems from her AMD. She agreed to let us include what she told us in a series of pages.
The 3 pages are linked together so you can start here and continue to pages 2 and 3:
Here are the links to pages 2 & 3:
If you have any comments, please share them here or come to our Facebook group for our discussion.
Do you know what the rods and cones are in our eyes? What do they do that is so important? What does that have to do with stem cell research? Find out and learn why the eye would be an…
We know Sue is hard on parts. What did she do THIS time? It’s a…
Do you have high blood pressure? Do you take medications for it? High blood pressure has been linked to AMD especially to the wet form. Unfortunately, some types of medications – beta blockers – for blood pressure can increase one’s risk for wet AMD. Read about what that means in terms of…
Have you heard the phrase “if it sounds too good to be true it probably is”? Unfortunately, there are individuals and companies who want to take your money. How do you spot a fraud? Sue gives us some guidelines.
When people offer to help you, do you feel that they pity you or sympathize with you? Is there a difference? Sue tells why we should…
The website for the Association for Research in Vision and Ophthalmology (ARVO) says that it “is the largest and most respected eye and vision research organization in the world. Our members include nearly 12,000 researchers from over 75 countries”. Sue shares information from presentations related to retinal issues at past conferences.
My Macular Degeneration Journal 