Author: Linda Moore

Not being able to drive can be one of the biggest challenges of having a vision impairment.  Sue has a circle of people who help her get where she wants to go but she is always concerned about whether she is asking too much and being a burden especially when she asks for…

Special Favors

• Categories: Sue’s Musings, Tips for living with low vision
• Keywords: rides, transportation, asking for favors, being a burden

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

 

Sue, like many people, has found that yoga is more than just good for the body, it’s good for the spirit as well.  Read on to find out what yoga has to do with the Rolling Stones, Wonder Woman, Supergirl and the…

Cowardly Lion

• Categories: Inspiration, Sue’s Musings
• Keywords: courage, virtues

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

Sue gives another ‘helpful household hint’, this one related to appliances including how to possibly get help replacing them.   She also tells us what happens when our clothes dryer is…

Full of Lint

• Categories: Financial, Sue’s Musings, Tips for living with low vision
• Keywords: Low Income Energy Assistance Program, low income

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

Have you been told there is nothing more that can be done medically about your AMD? If you have dry AMD, you probably HAVE heard that. How do we cope when we face news like this?  Sue shares coping skills from DBT that can help us in the midst of a crisis (acronym IMPROVE) and coping skills that can help us endure in the long term (acronym ACCEPTS).  What do the letters stand for?   Read how to use them to…

Keep On Keeping On

• Categories: Cognitive Therapy, Sue’s Musings, Self Help: Anxiety, Self Help: Depression
• Keywords: ACCEPTS, DBT, distress tolerance, IMPROVE

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

 

We love to hear from our readers.  We thank A.F. for her email about what others said to her when she told them about the AMD in one of her eyes (“At least you have one good eye!”).  Sue writes about why that is so stressful and also why we fear going blind.

One Good Eye

• Categories: Diagnosis: Newly Diagnosed, Tips for living with low vision
• Keywords: aging, fear of loss of sight, sensory loss

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

We continue to report on research being done into various aspects of macular degeneration.  There have been several drugs used to treat other diseases that are possibly helpful in treating AMD – in this case it’s doxycycline which is given to people and animals who’ve been bitten by a tick.  It may become a treatment for geographic atrophy.

Biochemistry Redux

• Category: Dry AMD, Research, The Science Stuff
• Keywords: clinical trials, complement pathway, complement system, complementary immune system, doxy, doxycycline, geographic atrophy, inflammation, Oracea, oxidative stress

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

 

Why do we put off doing some things?  Are they things that make us uncomfortable?  Is there anything we can do about it?  Why do I ask so many questions? ::grin::

Stop Procrastination…NOW!

• Categories: Cognitive Therapy, Sue’s Musings
• Keywords: acceptance, negative reinforcement, procrastination

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

Sue says it best: “If I had to define our ‘mission’ here, I would have to say part of it needs to be normalization of vision loss. Acceptance. Not complacency with avoidable blindness or an attitude of throwing up your hands in the face of unavoidable blindness. We cannot stop fighting vision loss and say it is inevitable. Instead I would like to see us work towards a more generalized acceptance and understanding that there are millions of us and we can and should be part of the community. The more we get out there, the more we will be part of the social landscape. As we adjust to our vision loss within our society, society can adjust to us.”

Our Mission

What is YOUR mission? Tell us about it.

• Categories: Inspiration, Sue’s Musings, Tips for living with low vision
• Keywords: community, our mission, assistive technology

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

How well can you see in the dark?  Despite being legally blind, Sue can see better at night without a flashlight! She talks more about the “lamp stuff” that is still BIG news and also about research in the UK where they are working on a delivery system that would mean no injections in the eye…that would be GREAT news indeed!

Geez, It’s Dark in Here!

• Categories: Dry AMD, Research, Sue’s Musings
• Keywords: complementary immune system, complementary system, dark adaptation, GA, geographic atrophy, inflammation, lampalizumab, low-luminence visual acuity, night vision

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.