Sue’s New Page 10/2/2016

Sue loves shoes & admits that she’s bought many of them because they are ‘cute’ & many of these have high heels.  These days, though, she’s had to do a lot of walking so she’s been wearing shoes often called ‘sensible’.  If she wanted to add more stuff to what she has to take with her these days, she could wear heels more often but let’s face it, she admits she has some difficulty keeping track of things as it is.  This is a day when she doesn’t have any need to wear sensible shoes so she’s going to enjoy it.

Today, I Wear Heels

Sue’s New Page 9/30/2016

Sue spent some time alone while her husband recuperated from back problems in the hospital and then in a rehabilitation center.  She has had to do things by herself that were no problem before her vision changed. She now knows that she can order food to be delivered so she won’t starve and she can arrange for transportation so she can get where she needs and wants to go.  But there are things that she’s realized she still needs to learn.

Always Learning

News: Change of Website Features

I just wrote a LONG explanation and you can read it below but for those of you who prefer short stories, here it is:
  • Sue writes the journal pages which was the original intention of creating the website and will always be our main objective.
  • I format those pages & insert the links.
  • Early on, I told Sue some of my ideas to expand what we were doing and I volunteered to do research, write & publish posts from the website and run the Facebook group.
  • I can no longer continue to do all of that (the reasons are below).
  • However, I can easily share what others in the field write in a timely manner through the Facebook group.
  • If you are an email follower but NOT in the Facebook group, you are missing out on:
    • current information put out by major AMD organizations;
    • what others like you with AMD have to say (we currently have 105 member & add new members almost every day);
    • my interaction with members with help I can provide them to research specifics concerns.

I highly recommend that you join us on Facebook.  Here’s the link:

If you need help figuring out how to do that, please let me know by leaving a comment on this page or by emailing me directly at light2sight5153@gmail.com.
Don’t worry that you will miss any of Sue’s pages.  Every time I publish a page or post from the website, I share it with the Facebook group.  You can continue to remain an email follower, you might just occasionally get duplicate information.
Thanks so much for your understanding, Lin/Linda..

Here’s the long story
As you know, Sue & I started this website in February 2016.   The initial goal was to publish Sue’s journal pages, the one’s she’s been writing about her experiences with AMD.  I took it upon myself to add a blog where I could share links (in addition to the links I insert in her page) that I found related to AMD.   My first job was to try to put together a page of links called Resources where I have an outline of topics with links related to them.  I try to keep it updated but I don’t always do such a good job.
Because it’s not easy to have conversations with followers on the website, in May I set up a Facebook group so we could offer that option. Many of the vision-related organizations and companies have Facebook pages and I can easily share their posts.  In that way, I can keep Facebook group members informed of the latest information and issues.
We have 2 groups of people with whom we share information:
  1.  email followers on the website who receive emails with new posts from the website;
  2. Facebook group members with whom I not only share daily posts but who also receive a link to any of the pages and posts published from the website.

We currently have 84 email followers and 105 Facebook group members.  Some email followers are also in the Facebook group.  Some Facebook group members are NOT email followers.

 In July, I thought about the fact that I wasn’t able to keep writing new posts for the website about news and developments in the field as easily as I can on Facebook so I started to create website posts with the daily links.  These posts have subjects starting with the word ‘News:’ followed by a date or dates.  The last one I sent out was for September 20-21st.  You can see that I have gotten behind.
Why can’t I keep up?  I’ve had lower back problems for some time but I recently developed sciatic issues from sitting too much & have pain even with frequent breaks.  I also am helping a friend who runs a dog shelter do much-need computer work.  This is something I volunteered to do last year and she has just now asked for my help.  Plus, there’s the rest of my life! 😉
Woman on the computer saying “I was going to clean my house…but then someone commented on my status.”
OK, that’s my story and I’m sticking to it!  Come join us on Facebook, hope to see you there!

Sue’s New Page 9/28/2016

One of the major issues for those who have had to quit driving because of vision problems is transportation.  Sue has been able to set up a complicated transit system for herself made up of rides from friends and co-workers and public transportation.  There is no room for error, there is no deciding at the last minute that you want to go to the grocery story.  Every day she has a previously-scheduled way of getting where she needs to go.

From One Point to Another

Sue’s New Page 9/23/2016

By now you know that Sue needs to keep busy.  That hasn’t changed from before her vision change.  She has lots of things to do outside her home and if there’s a lull in that activity and she’s “stuck at home” [her words, not mine], she admits that she’s not a Susie Homemaker type.  In this page, she talks about the kinds of things that people with impaired vision can do to make home a safe place.

There’s No Place Like Home

News: September 17-18-19, 2016

These are the links shared in the Facebook group for these date.