After Sue’s last appointment with Dr. Carl Regillo at Wills Eye Hospital in Philadelphia, we reported that she would be getting an injection of lampalizumab (“lamp stuff”) in December 2017 that would be part of phase 4. Since then we’ve found articles that are saying that phase 3 won’t end until 2019! We are…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue writes “Looking into the basics of getting around and doing what you can to get – and keep – your finances in order is crucial.” When to do this?
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Do you know that there are medications that can cause vision problems? There are!
If it becomes time that you need help with your daily life, assisted living facilities are an option.
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue writes “Go for your shots. Investigate changes in your vision immediately. Hard to get more basic than this.” She says this (among other things) is a…
If you’ve been following Sue’s journey, you know she tries to do what she can for herself and asks for help when she needs it. When a co-worker got upset with because she didn’t think to offer to help Sue, Sue didn’t know what to say or do to help that person feel better about herself. There really out to be a…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Are you still caring for children AND your aging parents? That puts you in the ‘sandwich generation’. Or are you taking care of a spouse or sibling? And what about the people who take care of us when we need it? For all these reasons, we need to watch for…
Current research is showing that there are several genetic reasons for the development & progression of AMD. Sue says “I admit defeat! Maybe I can study genetics for a decade and come back for a rematch.” She declares…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
When someone is diagnosed with macular degeneration, many people fear that they eventually won’t be able to do the things they enjoy. We’ll be talking about some of these things. First, it is…
Sue asks the question: Can people still be happy after vision loss? She says “…happiness is limited because we allow vision loss to rid us of dreams and things to look forward to.”
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
There are many things that are annoying when one’s vision is impaired. Here’s one…
We know that many of you are trying to conceal your vision impairment from co-workers, friends, family. Are there ways of…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
What does the term ‘bucket list’ mean to you? Things to do before you die? Sue talks about having at least two of them: one for the things you need to do to get through the day and the second for the dreams that you have.
Age-Related Macular Degeneration (AMD) is not the only disease of the macula, we know that some of you have a disease commonly called…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
It used to be that the Amsler Grid was the only way to monitor your vision. Sue talks about the other ways to…
It’s hard enough for people with ‘normal’ vision to read the small print on a medication bottle, what do you do if your vision is impaired? There are ways to help in…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Lin/Linda here: I am having difficulties with the software I use to maintain the website. I will be sending a few posts from days past that I do not think went out. Sorry for filling up your inbox!
Sue’s transportation system continues to schedule her with lots of time to spare some days. This day it started a mini pity party for her along with the not-so-good news that one of the 2 parallel clinical trials of lampalizumab didn’t meet its primary endpoint for the 1st of the 2 trials. Unfortunately, both Sue & the research hit some…
On the plus side, Sue found a review article that highlights the…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
My Macular Degeneration Journal 