Sue’s New Post 6/30/2017

We continue to report on research being done into various aspects of macular degeneration.  There have been several drugs used to treat other diseases that are possibly helpful in treating AMD – in this case it’s doxycycline which is given to people and animals who’ve been bitten by a tick.  It may become a treatment for geographic atrophy.

Biochemistry Redux

  • Category: Dry AMD, Research, The Science Stuff
  • Keywords: clinical trials, complement pathway, complement system, complementary immune system, doxy, doxycycline, geographic atrophy, inflammation, Oracea, oxidative stress

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

 

Sue’s New Page 6/29/2017

Why do we put off doing some things?  Are they things that make us uncomfortable?  Is there anything we can do about it?  Why do I ask so many questions? ::grin::

Stop Procrastination…NOW!

  • Categories: Cognitive Therapy, Sue’s Musings
  • Keywords: acceptance, negative reinforcement, procrastination

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

Sue’s New Page 6/28/2017

If you are not familiar with the word “kvetch” it is based on a Yiddish word for “complain” (verb) or “one who complains” (noun).  Sue’s not a kvetch but sometimes she just has to vent especially when things just don’t go as smoothly as she plans.  Is complaining always effective and helpful?

Kvetch, Kvetch, Kvetch

  • categories: Cognitive Therapy, Sue’s New Page
  • keywords: complaining, journaling, kvetch

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

 

Sue’s New Page 6/27/2017

Sue says it best: “If I had to define our ‘mission’ here, I would have to say part of it needs to be normalization of vision loss. Acceptance. Not complacency with avoidable blindness or an attitude of throwing up your hands in the face of unavoidable blindness. We cannot stop fighting vision loss and say it is inevitable. Instead I would like to see us work towards a more generalized acceptance and understanding that there are millions of us and we can and should be part of the community. The more we get out there, the more we will be part of the social landscape. As we adjust to our vision loss within our society, society can adjust to us.”

Our Mission

What is YOUR mission? Tell us about it.

  • Categories: Inspiration, Sue’s Musings, Tips for living with low vision
  • Keywords: community, our mission, assistive technology

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

Sue’s New Page 6/26/2017

How well can you see in the dark?  Despite being legally blind, Sue can see better at night without a flashlight! She talks more about the “lamp stuff” that is still BIG news and also about research in the UK where they are working on a delivery system that would mean no injections in the eye…that would be GREAT news indeed!

Geez, It’s Dark in Here!

  • Categories: Dry AMD, Research, Sue’s Musings
  • Keywords: complementary immune system, complementary system, dark adaptation, GA, geographic atrophy, inflammation, lampalizumab, low-luminence visual acuity, night vision

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

Sue’s New Page 6/25/2017

Sometimes I get tired reading about Sue’s schedule! She does, luckily, understand the benefits of balance of activity with rest especially when she runs…

Out of Gas

  • Categories: Sue’s Musings, Self care, Cognitive Therapy
  • Keywords: balance, cortisol, Deepak Chopra, exercise, rest, Sanja Gupta, sleep, stress hormone, weight

Do you have any suggestions for other categories or keywords?  Let me know in a comment her or send me an email at light2sight5153@gmail.com.

Sue’s New Page 6/24/2017

BIG NEWS!  In a few months, it looks like the first actual treatment for geographic atrophy (GA) will be available from a retinal specialist near you!  We call it “lamp stuff” and the phase 3 clinical trials will be wrapping up in July…at least that’s the plan (disclaimer: plans can change, we’re reporting the status as of this moment in time).  Phase 4 is scheduled to start in December and it appears that Sue will be part of it! And those of you with GA, you could possibly be part of it, too.   Read all about the…

BIG News!

  • categories: Diagnosis: Newly Diagnosed, Dry AMD, News, Research, Sue’s Musings, Treatment
  • keywords: clinical trials, lampalizumab, Phase 3, phase 4, phase III, phase IV, RPEs, stem cells

Sue’s New Page 6/22/2017

Sue tests the Aipoly app that she mentioned in her previous page.  Does it live up to the hype?  And in the continuing saga of maintaining a network of people who can provide transportation, she asks…

How Many Favors?

  • Category: Low Vision Aid, Sue’s Musings, Technology, Technology; Apple, Technology: Android, Technology: Phone/Tablet/Computer, Tips for living with low vision
  • Keywords: Aipoly, Android apps, Apple apps, transportation

Sue’s New Page 6/21/2017

Sue talks about 2 apps for those with low vision: LowViz Guide which helps people navigate indoors and Aipoly which identifies objects in photos that you take.

App Update

  • Categories: Low Vision Aid, Technology, Technology; Apple, Technology: Phone/Tablet/Computer, Tips for living with low vision
  • Keywords: Aipoly, Android apps, Apple apps, artificial intelligence, BeMyEyes, Dan Roberts, iBeacons, LowViz Guide, VoiceOver