My Macular Degeneration Journey/Journal
From Diagnosis to Decision – June 2023 Since Sue has not written any new journal pages for some time, the site has been archived until we can decide if the work necessary to make sure all information is accurate and up-to-date can be made. In the meantime, you'll get some pages 'not found' or 'private' until that decision has been made. The emphasis for several years has been on the Facebook group.
Sue was first referred to a stem cell clinical trial in August 2015. It is now 1 year and 3 months that she has been waiting…often impatiently she admits. When she wrote this page, she’d pulled everything out of her DBT ‘bag of tricks’ – distress tolerance and opposite to emotion skills, refuting and reframing thoughts. Did they work? She then tried thought stopping and describes what that is and how it works.