When Sue’s vision declined 2 years ago, she began to investigate what research was being done into AMD specifically geographic atrophy which is what she has. She is within driving distance (90 miles) of Wills Eye Hospital and Dr. Carl Regillo who has conducted significant research in the study of AMD. She has been seeing Dr. Regillo every 6 months and is being considered for 1 of 2 clinical trials (or is it 3? Hard to keep track). There have been many delays. There may now be actual progress and she’s wonder if being Super Lab Rat will finally be…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.