Updated: Where can I get support?

There are many reasons why a person with AMD might look for and benefit from support. Click here to read a great article about how the initial reaction to a diagnosis of AMD is like going through the stages of grief

There are support groups on the computer and off. Some are led by peers and some by professionals. You may find a support group that you can attend in your area sponsored by low vision professionals and organizations, senior groups, schools, libraries or that are put together privately by other people with the same problem as you.

On the computer you can find support groups that meet:

using video, audio or text chatting in ‘real time’ (also referred to as ‘live’).
using messaging systems also called discussion groups or message boards. You can leave a message at any time for other members of the group and read messages posted by others.

Click here to read about the benefits of support groups for people with AMD.

Message Boards/Discussion Groups on the computer

American Foundation for the Blind (AFB) several discussions topics
AFB Maintaining Independence in the Home
AFB Family Connect for parents of children with visual impairments
VisionAware
Macular Society in the UK
UK’s NHS site for AMD community page
Facebook: Macular Degeneration Community, Blind Penpals
Our Facebook page: My Macular Degeneration Journey/al
Treatment & Charles Bonnet Buddies UK
Support Groups in California, USA
BrightFocus Foundation: Share your story, read story of others

By email

Discussions via email– a list

Meet in person

On the phone/telesupport

International Low Vision Support Group (US)

Start your own

International Low Vision Support Group-download video presentations

This group provides free information and support through presentations to groups of senior adults affected by macular degeneration and related retinal diseases. You can join & get access to their materials so you can use them in your own group.