Author: Linda Moore

Our Facebook group has grown to 1317 members as of this morning, I added 24 new members just this week!   We started the group to enable members to interact with each other and share information.  I’ve been moderating the group since May 2016.  Over the years, I’ve observed that as people enter the group they often ask questions about what supplements they should take and what foods they should eat.  Often the AREDS/AREDS2 supplements are recommended by physicians and other people with AMD as if they were a ‘treatment’.  They are not and the research behind them shows that they don’t help everyone.   The research also shows that AMD is a disease with many risk factors and possible causes.  I wrote this page hoping that in addition to sharing some honesty I can also share some optimism.

My Two Cents

Are you new to the diagnosis?  Just starting your research?  The page I Have Macular Degeneration – Now What? will get you started on your own journey.

To read about Sue’s journey with AMD,  you can start In The Beginning.

Are you confused about whether the AREDS/AREDS2 research showed if they can help you?  Go to Review of the AREDS & AREDS2 Research Results: An Attempt of Make Them Clearer for Patients and Family Members.

 

There’s a lot of talk lately about our genes in many diseases including in macular degeneration.  Gene therapy techniques are an especially hot topic that Sue writes are…

Cool Things

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

Sorry for the pause in publishing new pages.  The hard drive in my laptop died so it was ‘in the shop’ for a few days.  It’s fixed and I’m back in business!

I’ve changed the direction of this series to share the pages Sue wrote about the apps and technology that she uses or has tried.  This is just the first page, more to come.

But first, see what she started with…

When Sue’s vision declined in early 2016 & temporarily prevented her from being able to work, she contacted Pennsylvania’s Office of Vocational Rehabilitation’s (OVR) Bureau of Blindness and Visual Services (BBVS).  They helped her financially & with advice from Vision Rehabilitation Therapists (VRTs), she put together a ‘toolkit’.

• A Day in the Life – about her non-work days
• A Day in the Life: Work Day– about her work days

Now check out what Sue is using 2 years later…

Sue’s Toolkit – 2 Years Later

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

 

 

 

Sue is teaching another DBT course and writes about the topic of justified and unjustified emotions.  How do you decide when an emotion is one or the other?  Who decides that?  What about intense emotions?  With vision loss Sue writes “we may have some pretty intense reactions to some of the strangest things.”  And what about…

Just the Facts

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

Sue wrote this on Friday and she was a little, well, she calls it ‘slap happy’. ::grin:: The serious content of the page is about Medicare which is the US federal government’s insurance for people over 65 and others.  There are many options to check out so she’s singing Smokey Robinson’s lyrics…

Shop, Shop Around

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

Lin/Linda here: Call Ghostbusters!  I have gremlins in the website!  There were some ‘broken links’ in several recent emails.  All I can say is that this happened at the same time our website was moved from one computer (called a server) to another. Shouldn’t have happened but it did so we go on.

If you get the “oops, can’t find the page”, it’s OK to tell me either by leaving a comment or emailing me.  I test every post before it goes out but I think the problem occurred after that.

We continue to share quotes from Sue’s journal pages in anticipation of our 2nd anniversary on February 25th.  We hope this will encourage you to explore our ever-growing website that has over 500 journal pages and over 600 posts!

Here are the links and dates for the most recent 3 pages.  They do link from one to the next but you may have already looked one.

Sue’s Musings Then and Now – Part 2 – 1/20/2018

Sue’s Musings: Then and Now – Part 3 – 1/24/2018

Sue’s Musings: Then and Now – Part 4 – 1/25/2018

Want to start at the beginning?

Sue’s Musings: Then and Now – Part 1 – 1/18/2018

Have a favorite page or two?

I know that some of you save your favorite journal pages. Do YOU have a page you’d like to recommend?  If you do, add it in the comments section or email you recommendations to me at light2sight5153@gmail.com.  Thanks!

 

Sorry, I had a bad link in the first email I sent out…here is the corrected post.

We continue to share quotes from Sue’s journal pages in anticipation of our 2nd anniversary on February 25th.  We hope this will encourage you to explore our ever-growing website that has over 500 journal pages and over 600 posts!

Sue’s Musings Then and Now – Part 2 – 1/20/2018

I know that some of you save your favorite journal pages. Do YOU have a page you’d like to recommend?  If you do, add it in the comments section or email you recommendations to me at light2sight5153@gmail.com.  Thanks!

 

This is the third year that Sue has provided US Federal Tax advice for those with visual impairment because…

It’s That Time – Tax Time – Again!

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1