It’s no secret that the biggest problem that Sue has is transportation. She uses a shared ride van service where the scheduling often means that she is picked up ridiculously early or is dropped off late to work. It makes her angry, frustrated & resentful. How should she deal with this?
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Once again, I sent Sue an article with research that makes her think about something in her lifestyle. This time, it’s an article about how fats may contribute to AMD. Sue’s honest about her diet, she’s shared that her 2 favorite ingredients are fat and salt. Summer for her means fresh tomatoes which leads to bacon, lettuce and tomato sandwiches (BLTs for short) with…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
There are several medications being researched to treat geographic atrophy. We are keeping track of their progress. In the meantime, beware of emails asking for money like the one Sue got from…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
This page falls into the category of pet peeves! Do YOU have any?
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue thrives on being busy & solving problems. She asks “How can we maintain challenge and accomplishment in our lives now that we are older and have a vision loss?” Her answer is no surprise to those who know her…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
After Sue’s last appointment with Dr. Carl Regillo at Wills Eye Hospital in Philadelphia, we reported that she would be getting an injection of lampalizumab (“lamp stuff”) in December 2017 that would be part of phase 4. Since then we’ve found articles that are saying that phase 3 won’t end until 2019! We are…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue writes “Looking into the basics of getting around and doing what you can to get – and keep – your finances in order is crucial.” When to do this?
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Do you know that there are medications that can cause vision problems? There are!
If it becomes time that you need help with your daily life, assisted living facilities are an option.
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue writes “Go for your shots. Investigate changes in your vision immediately. Hard to get more basic than this.” She says this (among other things) is a…
If you’ve been following Sue’s journey, you know she tries to do what she can for herself and asks for help when she needs it. When a co-worker got upset with because she didn’t think to offer to help Sue, Sue didn’t know what to say or do to help that person feel better about herself. There really out to be a…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Are you still caring for children AND your aging parents? That puts you in the ‘sandwich generation’. Or are you taking care of a spouse or sibling? And what about the people who take care of us when we need it? For all these reasons, we need to watch for…
Current research is showing that there are several genetic reasons for the development & progression of AMD. Sue says “I admit defeat! Maybe I can study genetics for a decade and come back for a rematch.” She declares…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
My Macular Degeneration Journal 