Author: Linda Moore

Sue’s an avid reader, always has been.  She continues to read by taking advantage of low vision options for books and for magazines.  She’s found the options that are available for the magazines that she has subscribed to for years.

Get Your Magazines

• Categories: Sue’s Musings, Technology, Tips for living with low vision
• Keywords: BARD, magazines, Nat Geo Traveler, National Geographic, Reader’s Digest

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In addition to sharing her recommendations for good books and where to get them, Sue tells us about research using the eyes of pigs to study drusen.  And if you’ve heard this expression, you can now find out where it came from…

In a Pig’s Eye

• Categories: Research, Sue’s Musings
• Keywords: audio books, audiobooks, BARD, books, Bruch’s membrane, pig, research, retinal pigment epithelium, RPE

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What do you do when you have an especially bad day?  If you’ve just gotten a diagnosis of AMD, you may be extremely upset and wonder when and if you will be able to accept it.  Sue talks about how we can turn a bad situation into acceptance or at least turn towards positive functioning. And she shares the Mark Twain quote: “The more I learn about people, …

The More I Like My Dog

• Categories: Cognitive Therapy, Sue’s Musings
• Keywords: turning the mind, distress tolerance, DBT

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What do geese flying in formation have to do with the risk of suicide?  Why does Sue tell us to…

Be a Goose

• Categories: Self care, Sue’s Musings
• Keywords: mental health, social connection, social network, suicide, support

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If you have wet AMD, you know how important it is to keep up with the treatments that you are getting.  If you don’t, the result could be retinal scarring.  That’s not the only reason it can occur, though.  Read about it here and then repeat after Sue…

I Promise

• Categories: Non-AMD Eye Problems, Research, Symptoms, Treatment, Wet AMD
• Keywords: macular hole, macular pucker, membrane peeling, retinal scarring, vitrectomy

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Lin/Linda here with a page.  Do you have or have you had a parent or sibling with AMD?  Was their experience so upsetting that you fear the same fate?   When I look back at what help my dad had when he had advanced AMD (geographic atrophy), he had very little beyond a handheld magnifier.  Today he could have watched TV with the MaxTV glasses and audio description, could have read the magazines & newspapers he loved with a tablet or smart phone on a stand, could have read a menu in a restaurant with a smart phone magnify app.   And he might have been able to sign up for the upcoming phase 4 trial of the first treatment for geographic atrophy!

Timeline Part 1: Advances in Treatment & Care for People with Macular Degeneration

• Categories:  Diagnosis: Newly Diagnosed, Dry AMD, Future, Low Vision Aid, , Nutrition, Research, Self care, Technology, Technology; Apple, Technology: Android, Technology: Phone/Tablet/Computer, Testing, Tips for living with low vision, Treatment, Wet AMD
• Keywords: AMD developments, Americans with Disabilities Act, Android, apple, AREDS, AREDS2, audiobooks, Avastin, baby boomers, CCTV, clinical trials, e-book reader, e-books, Eylea, facebook, fluorescein fundus, Google, GPS, history of AMD treatment, iPad, iPhone, large print books, large print calculators, laser treatments, Lucentis, mac, Macugen, not your parents AMD, OCT, research, senile macular degeneration, telescopic implant, VoiceOver, wearable technology, Windows, World Wide Web

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

“It’s not fair.”  Have you said this or has someone said this to you about your AMD? Is this disease a punishment for something you did or didn’t do in your life?  Is good vision a reward for a virtuous life?  Is it productive to dwell on the fairness of this diagnosis?  Someone suggested that Sue just needs a …

Good Knock on the Head

• Categories: Sue’s Musings
• Keywords: It’s not fair, fairness, things people say

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Many of us – Sue and I included – have had a first-degree relative with AMD (parent, sibling, child).  My dad was diagnosed in 2005 and lived with geographic atrophy until his death in 2012.  During that time he was the primary caregiver for my mother who had Alzheimer’s Disease.  The only resources he had available were handheld magnifiers and AREDS supplements (not AREDS2, those results weren’t released until 2013).  Sue has geographic atrophy now and what a difference a decade has made! It is DEFINITELY…

Not Your Parents’ AMD

Tomorrow I’ll be publishing my page “Timeline: Advances in Treatment & Care for People with Macular Degeneration”.   You may be surprised at how much of what we have now has been developed in the past decade!

• Categories: Diagnosis: Newly Diagnosed, Dry AMD, Future, Low Vision Aid, , Research, Self care, Sue’s Musings, Technology, Technology: Phone/Tablet/Computer, Tips for living with low vision, Wet AMD
• Keywords: audio descriptive services, BARD, books, CCTV, clinical trials, glasses to watch TV, handheld reader, iPad, Justand, KNFB reader, maxTV glasses, monocular, newspapers, research, TV glasses, ZoomText

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.

What does ‘mortal coil’ mean?   Wikipedia says it’s “a poetic term that means the troubles of daily life and the strife and suffering of the world. It is used in the sense of a burden to be carried or abandoned…”  Sue gives us research that tells us “…there really is such a thing as a self-fulfilling prophecy when it comes to aging, disability and, yes, even death. Believe you are no longer competent and able to engage in life and that is exactly what will happen.”

Mortal Coil

• Categories: Sue’s Musings, Tips for living with low vision
• Keywords: disability, mortal coil, self-fulfilling prophecy, senior citizens, seniors

Do you have any suggestions for other categories or keywords?  Let me know in a comment here or send me an email at light2sight5153@gmail.com.