Author: Linda Moore

It’s hard to believe that one year ago about this time, Sue and I went from talking about ‘ordinary’ things, things that we’ve been talking about for 40 years, to trying to figure out what Sue needed to do to take care of herself with a whole lot less vision.   We both share our thoughts about this year.  Sue first.

One Year Anniversary: Part 1 What I’ve Learned

We’re going to bring the pages closer to real time for the next several days to talk about where Sue is a year after her vision declined so much that she had to stop driving and stop working (temporarily).  First, let’s look at where Sue is in terms of her quest to become ‘super lab rat’.

The Waiting Game

Sue and her husband had a vacation in Iceland in September.   The stress of getting things done before the trip reminded her of the panic attacks she had when the sudden change in her vision caused her to stop working and driving.  In this page, she shares advice on what to do if you have panic attacks.  And she provides a song that will get stuck in your head for the day…

Grandma’s Reindeer

I looked up the definition of bittersweet: “both pleasant and painful or regretful.”  Sue’s enjoyed the summer but it’s time to say goodbye to it and to a furry colleague. 

Bittersweet

Sue continues to share what she’s learned from her BVS therapists.  Here’s an app that creates what sounds like an oxymoron: an audio label.

Talking Labels

In Andrea’s last page (for now) we get good news about the fate of her villain The Joy Thief.

MYopia, My Journey: Part 4 Jail the Joy Thief!

Andrea reminds us that even though retina specialists are intelligent and important in our journey, we must advocate for ourselves.

MYopia, My Journey: Part 3 Advocate for Yourself

In Part 2, Andrea tells us how macular degeneration has affected her life and introduces the villain The Joy Thief.

MYopia, My Journey: Part 2 The Joy Thief

We are very pleased to add Andrea, a member of our Facebook group, to our growing list of guest writers.   She tells us about her journey with Myopic Macular Degeneration.

MYopia, My Journey: Part 1

 

Sue first contacted Pennsylvania’s Office of Vocational Rehabilitation (OVR) Bureau of Blindness and Visual Services (BBVS) in mid February.  She had an Orientation & Mobility (O&M) Therapist, a Vision Rehabilitation Therapist (VRT; Sue’s been calling her the ‘habilitation person’) and ‘the tech guy’ (not sure what his official title is) who helped her get back to work.  Now it’s time for…

Graduation