Although the concept of ‘talking books’ has been around for MANY years – since the invention of the phonograph by Thomas Edison in 1877 – it wasn’t until the mid-to-late 1970s that they became available commercially. 1986 is considered a turning point (read more about it in Wikipedia). Now the industry is going “where no one has gone before”…
Category: Sue’s New Page
Sue’s New Page 5/22/2018
I apologize that I’ve gotten behind with Sue’s pages. You’ll know how far behind when you read her first line “Happy Cinco de Mayo!” and read about her getting ready for a conference that she’s been back from for a week! She wrote about news of research pairing Eylea with an antibody with the hope of increasing its effectiveness while she was packing for the conference and declared…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 5/20/2018
Sue writes about…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 5/16/2018
Continuing with…
Quiz Time!
Once again, the topic of the AREDS/AREDS2 supplements keeps coming up and there is still mis-information being passed around. I understand it’s a complex topic so we’ll just keep going over it. Test your knowledge. The questions are all based on the AREDS and AREDS2 research (and related studies) after they were done.
Click here to go to the quiz and the answers.
Sue’s New Page 5/14/2018
Sue’s email inbox is usually full but she eventually gets to most of the ones about research into AMD. She writes about two studies using anti-VEGF injections for wet AMD.
It is so frustrating not be able to do things at home that you might have been able to do in the past and do safely. There are some good tips for avoiding some of these things so that you can remain safe and independent. Here’s a good article with tips on:
- finding clothing that matches
- using the microwave control pad so you don’t burn your food
- avoiding falls on floors, over furniture and down steps by providing contrast
- chosing the right kind of lighting for the area and the task
- putting lighting where you need it, inside and outside
- cutting down glare that makes it more difficult to see
- finding out what low vision aids are available for the home and where to get them
- adapting each room in the house for your needs
Sue’s New Page 5/12/2018
There are some research studies that just don’t look like they’d be fun to be part of. Sue & I both agree that this is one we wish we’d been part of!
It’s been 2 years since Sue started writing her journal pages and I added content from my research. With all that content, we know it is hard to know where to start if you’ve not been following from the beginning. Earlier this year I went through her journal pages and highlight some of her words to help you to find pages that may be helpful to you.
There are 4 Sue’s Musings pages, you can start here:
Sue’s Musings: Then and Now – Part 1 – 1/18/2018
I know that some of you save your favorite journal pages. Do YOU have a page you’d like to recommend? If you do, add it in the comments section or email you recommendations to me at light2sight5153@gmail.com. Thanks!
Sue’s New Page 5/10/2018
It’s nothing new that Sue is busy. It IS new that I have been, too. I’m trying out a new work-at-home job in something new for me so the learning curve is steep. The good news is that you’ll read that being busy is good for those of us of a ‘certain age’.
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 5/7/2018
Sue has admitted that she’s not big on changing her diet. But the recent research on the benefits of dark chocolate has her asking “And exactly WHY was I not informed about this study?”
How can I listen to audiobooks without a computer, tablet or smartphone?
So you do not have a computer or tablet or smartphone but you want to continue to read? Want to listen to audiobooks?
The US National Library Service (NLS) has a FREE service called Talking Books where if you qualify they will send you an audiobook player and audiobooks (also includes audio magazines). They have hundreds of thousands of titles that you can see here–>https://www.loc.gov/nls/braille-audio-reading-materials/online-catalog-search/
You can also find the library near you that has a special-format library service that can help you find the equipment and the audiobooks–>https://www.loc.gov/nls/braille-audio-reading-materials/find-a-local-library/
Sue’s New Page 5/5/2018
If you’ve been following Sue’s journey through her journal pages, you know that Sue is not a patient person. She’s written that training 2 puppies is somewhat like dealing with vision loss. Her advice for both is to…
Did you know that our website has a page of links to helpful articles & resources? One of the sections has these links to “Websites devoted to AMD”:
- Macular Degeneration Partnership
- Macular Disease Foundation of Australia
- American Macular Degeneration Foundation
- AMD Alliance International
- Macula Vision Research
- Macular Society (UK)
- RNIB (Royal National Institute of Blind People; UK)
- RNIB (Scotland)
- BrightFocus also Alzheimer’s & Glaucoma
- Macular Degeneration Association
If you find any links that don’t work, please let me know in a comment or an email to me at http://light2sight5153@gmail.com
Sue’s New Page 5/3/2018
Every once in awhile we get emails from people with stories to tell. Recently, it was someone who believed he had positive results reversing some of the effects of AMD using only supplements with lutein and zeaxanthin in them. Sue writes about some of the research about these carotenoids. It seems that they can…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
My Macular Degeneration Journal 