Sue keeps busy outside her home. She says “I am cognizant the time is coming I will be home with…”
She’s talked about audio description for live and recorded entertainment. How do you set it up? Maybe put out an advertisement saying…
Category: Sue’s New Page
Sue’s New Pages 8/18/2017
It was February 2016 when Sue’s vision declined such that she had to take a break from her ‘normal’ life to work with vocational rehabilitation staff who helped her get the devices & training that she needed for her ‘new normal’ life. More than a year later, some of the things she learned to do differently – such as shopping at Walmart – result in an…
There is power in numbers and the number of people with AMD grows as people are aging and living longer. We know we are the good guys who can encourage everyone, especially older folks, to have thorough eye exams. Together we are the…
Sue’s New Pages 8/17/2017
Sue tells us about 2 women in the field of AMD. Both are involved with stem cell research.
Sisters Are Doin’ It For Themselves
Not everything you hear or read about AMD is accurate or up-to-date. We found one particular video clip where the information they shared was just wrong. And be aware that some of what is out there is…
Sue’s New Pages 8/16/2017
One thing that is not always communicated to patients is that all AMD starts as dry. Wet AMD is one form of advanced AMD; geographic atrophy is the advanced form of dry AMD. Why is it that so many people’s first diagnosis is of wet? Can you have both forms at the same time? Read more about this as well as get an update on what’s going on with the clinical trial that Sue is waiting to be part of.
How much can using our other senses help when we have vision impairment? Sue offers some suggestions on using our sense of touch.
Sue’s New Pages 8/14/2017
Competence is important to Sue, whether it is that of others or of herself. She says “Since I had my vision loss, I have an underlying uneasiness about becoming incompetent in my job. When will it happen? Will I recognize it when it happens? Will people cover up for me? And if they cover up for me will I leave my profession with a tarnished reputation? I never had these thoughts before but I have them now.” To her, competence is about…
Her shared ride transportation continues to be a problem. Also, she wonders why there isn’t a book “Miss Manners for the Proper Low Vision Sufferer”. On a more positive note, she has her first visually impaired client. It’s important to remember that little irritations are the stuff of low vision and…
Sue’s New Pages 8/13/2017
Things have piled up for Sue. Her scotoma is getting denser, it’s been rainy and she’s sleepy, and her shared ride transportation continues to waste her time. It all adds up to…
Sue talks about 3 ways to magnify and move images to the healthy part of one’s retina, each with varying price tags. None of them halt the progression of the disease so…
Sue’s New Pages 8/12/2017
Can you really accept being a visually impaired person? How? Sue tells us “Every day we accept a little more of our new identity and the ways we now have to live our lives. It is an incremental thing.” Here’s one tool to help…
I’ve told Sue that I am constantly amazed when after 18 months of research we learn something new. Sue’s been looking for information about how much she can expect her scotomas (blind spots) to progress. We’ve learned more about how doctors can follow disease progression including what it means when they see this on a particular test…
Sue’s New Pages 8/11/2017
Sue has times when she feels sorry for herself. That’s normal when one’s vision loss impacts daily life. In this page, she says “We all have our setbacks. We just cannot wallow too long. Sometimes it is time for an…
Many of us have floaters which are not symptoms of AMD. How do we know when they are ‘normal’ and when you should have them checked out? If all else fails, consider them…
Sue’s New Pages 8/10/2017
No matter how much we learn, we are always finding new information. Sue found an article that talks about the fovea, drusen, geographic atrophy, and what happens if wet AMD is not treated.
There’s more in this article including terms like PED. Did you know that there are different forms of wet AMD?
Sue’s New Pages 8/9/2017
A year after her worsening vision caused Sue to take a break from what WAS her normal life, she realizes that now she’s writing about…
We’ve discovered that getting answers to questions about what happens when AMD progresses isn’t always easy. Sue has found that she’s not the only one who thinks that figuring all this out is like…
My Macular Degeneration Journal 