Category: Sue’s New Page

Sue and her husband had a vacation in Iceland in September.   The stress of getting things done before the trip reminded her of the panic attacks she had when the sudden change in her vision caused her to stop working and driving.  In this page, she shares advice on what to do if you have panic attacks.  And she provides a song that will get stuck in your head for the day…

Grandma’s Reindeer

I looked up the definition of bittersweet: “both pleasant and painful or regretful.”  Sue’s enjoyed the summer but it’s time to say goodbye to it and to a furry colleague. 

Bittersweet

Sue continues to share what she’s learned from her BVS therapists.  Here’s an app that creates what sounds like an oxymoron: an audio label.

Talking Labels

In Andrea’s last page (for now) we get good news about the fate of her villain The Joy Thief.

MYopia, My Journey: Part 4 Jail the Joy Thief!

Andrea reminds us that even though retina specialists are intelligent and important in our journey, we must advocate for ourselves.

MYopia, My Journey: Part 3 Advocate for Yourself

In Part 2, Andrea tells us how macular degeneration has affected her life and introduces the villain The Joy Thief.

MYopia, My Journey: Part 2 The Joy Thief

We are very pleased to add Andrea, a member of our Facebook group, to our growing list of guest writers.   She tells us about her journey with Myopic Macular Degeneration.

MYopia, My Journey: Part 1

 

Sue first contacted Pennsylvania’s Office of Vocational Rehabilitation (OVR) Bureau of Blindness and Visual Services (BBVS) in mid February.  She had an Orientation & Mobility (O&M) Therapist, a Vision Rehabilitation Therapist (VRT; Sue’s been calling her the ‘habilitation person’) and ‘the tech guy’ (not sure what his official title is) who helped her get back to work.  Now it’s time for…

Graduation

When I find something that I think Sue will be interested in, I send it to her and sometimes that results in a her writing a page.  This is Sue’s perspective on a…

Bucket List

We’re still in August with Sue’s pages.  It will soon be a year since her worsening vision disrupted her life, a year since we started the website, and we’ll soon both be writing about that.  In both cases, it is indeed a…

Ticking Clock