Four years ago in February 2016, Sue and I started our website. She has been sharing the details of her journey with advanced dry AMD/geographic atrophy. I’ve been helping with the research and adding resources. We had no idea where it would lead us. Here we are, almost 700 pages later and with a Facebook group of almost 4,000 members! We both are also celebrating the one-year anniversary of our work with the Health Union site maculardegenetion.net as Advocates (she’s a Patient Advocate & I’m a Caregiver Advocate) and Contributing Authors. Would it be cliché of me to say, “We’ve come a long way, babies!”? ::smile::
Happy Anniversary 2020! Celebrate the Successes!
Our Facebook Group
Sue writes, “To the question – implied – if you can get where I am now, I would say “Yes”. Many of you can. If you cannot find anything you need from me, lean on other group members. Ask them for guidance. Forge your own path. Just keep on moving forward.”
Have you joined our Facebook group ‘Our Macular Degeneration Journey’ yet? Things have slowed down dramatically on our website, partly because Sue is too busy living her full life, partly because I’m busy with the Facebook group! Join me there to get both education and support! You will find that you are NOT alone!