Research – My Macular Degeneration Journal

Highlight: Dry Macular Degeneration Clinical Trials 1/7/2017

There is no current treatment for dry AMD. There IS encouraging research and for those of us who subscribe to the newsletter from WebRN-MacularDegeneration, we just got a link to a page that discusses ‘a sampling’ of the studies including for those with geographic atrophy which is one of the advanced forms of AMD. Several of the studies are looking for participants.

Click here to go to Dry Macular Degeneration Clinical Trials. Number 3 is the study that Sue is waiting to participate in.

WebRN-MacularDegeneration is a great website & I recommend that you subscribe to the newsletter.

Highlight: There’s so much research out there but how can I understand a research paper if I’m not a scientist?

Great question!

One of the things I hear people say often is something like “the research on that is [pick one: interesting/great/confusing/promising]”. Have you ever tried to read a research article that is written in a ‘scientific’ format? When I was in college in the dark ages, I was in a field where I wrote them and read them a lot but in the years since then I didn’t need it. When it came time to start the website with Sue and share information based on research, I had a tough time. I still do with some of them (I have not yet made it all the way through the scientific paper on AREDS2). Here’s a GREAT article.

There are 11 steps & I especially like the last one: “11. FINAL STEP: (Don’t neglect doing this) What do other researchers say about this paper?”

How to Read and Understand a Scientific Paper: a Guide for Non-Scientists

VIDEO: Summary of Research & Developments – 2016

Here’s a very extensive & HOPE-full video (50 minutes) “Summary of Research & Developments – 2016” from June 2016 presented by Dr. Dan Roberts, Director of MD Support (mdsupport.org)

Click here to start the video

Click here for the printed transcript