According to Lin, this is my 100th page. I guess I can ‘talk’ a lot. Not necessarily a bad thing in this case. We have taken AMD education on as a project, a quest as it were. I have said before, I am an educator at heart and we have found the lack of general information on AMD just plain scary.
This is something that will affect millions but unless we go out and seek the information ourselves, most of us will only know what we can read from an 8.5 x 11 inch trifold! Really?!?!?!
And that is just the information on the disease. What about emotional coping and daily living skills? Where are people getting that information? Quite honestly, I hope it is here. (But if it is not, don’t go away. We love you anyway and would love for you to share what you have learned.)
Let me get off my soapbox before someone goes looking for the hook. Give me a public forum and I can rant. Lectured the girl who cut my hair last week?.
Lin says there would be no website without me. Well, yeah. I am the unlucky soul who came up with AMD. I’m afraid there is not a lot of glory in that. If I take any glory, it will be for deciding to turn lemons into lemonade. I brought the lemons. Lin brought the squeezy thingee, the water, the sugar and the pitcher. She has also done 95% of the real work. I just vent.
I generally do my venting on a tablet I bought for the purpose. I got it cheap when I got my phone. If necessary I can get my emails and text on here and make the font HUGE. I usually write using about a 24 point font.
If I am not using a 24 point font, things can become amusing. Both autocorrect and speech-to-text hate me. They like to make a fool of me. Whom am I trying to kid? Even with 24 point font, things become amusing. I am made a fool of a lot. Fortunately, it is not a new experience. I can cope.
Lin outlined how we do what we do (About Our Project). Ideas usually come from what is happening most recently in my life.
Earlier in the process I had plenty to say. Thus, our being about 9 weeks behind ‘real time’ in our publishing. More recently – the pages you will be reading in a couple of months – I have settled into day-to-day life as one of the visually impaired. Not as ‘exciting’. Not as many new ideas. But there are challenges.
What DO you do when you realize this may be as good as it gets from here on out? When you have slayed as the dragons you can but a big one still remains? I guess we find out.
I thank you for staying with us for the last 100 pages and Lin’s many, many informative posts. I thank you for your kind words. I thank you for accompanying me on this journey. [Lin here: I thank you as well for your patience when I get behind schedule & when things don’t go quite right. And for your support for us both.]
“Good company in a journey makes the way seem shorter.” Izaak Walton