Author: Linda Moore

Many people who have AMD also have cataracts. With both diseases, age is one of the main risk factors. Sue writes about an IOL (Intraocular Lens which is implanted during cataract surgery) being tested to improve vision for those with this…

Dual Diagnosis

From 2016

You may have noticed that Sue loves quotes & she knows a lot of them.

Keep Moving Through Hell

From 2017

Sue continues to test apps, one of them is NaturalReader which she wrote about in the previous page (Jabbering) – that’s what the “whoopsie” is about.  She talks about e-books and sources of them as well as about biking and investing – another mixed bag!

Whoopsie!

In June of this year, an article was published “Can psychological stress cause vision loss?”. Sue wrote about it in her recent page “Focus.” In this page, she writes about being tired which led to her feelings of frustration and disappointment. Both of them certainly fall into the category of stressors.  She writes about techniques that can help reduce the stress and introduces us to a very interesting website called…

Zen Habits

From 2017

We’ve already talked about preconceived notions.  Here’s another one.  Have you been wearing eyeglasses & had someone question you about them, wondered why the lenses weren’t bottom-of-soda-bottle thick?  Depending on how your vision has been affected by AMD, getting your refractive errors fixed can help.  But the bottom line is that we are not all like…

Mr. Magoo!

 

Sue continues to write about the stem cell study she hopes to become part of.

Stem Cell Study Part 2

From 2016

One of the risks those with impaired vision face is that of falls. AMD affects depth perception, balance, peripheral vision and the ability to see contrast and color.  Sue tells us how yoga can help improve your balance and reduce the risk of falls.

Yoga for You

From 2017

Many of you are working and hope to continue doing so for as long as possible.  Sue writes about some things that can happen when vision loss changes the dynamics of…

Chiefs & Indians

Sue is still waiting to hear if she’ll be invited to be a participant in a stem cell study.  She was given the patient consent document and she goes through it with us.

Stem Cell Study Part 1

From 2016

Have you found that it’s harder to deal with mistakes now that your vision has become poor?  Do you have more self-doubt?  Sue has and she shares what it takes to not let this paralyze you.

I Screwed Up

From 2017

I proposed this topic to Sue because of an article I shared with the Facebook group Re-thinking Antioxidant Supplementation for Macular Degeneration which presents criticism of the AREDS research.  Considering that many doctors recommend the supplements from that research as if they were a ‘treatment’, how do we as patients deal with the conflicting information that we find? As several of the Facebook group members pointed out, it’s not only in this field that we are faced with this (is fat OK or not OK, is coffee OK or not OK, etc).  How do we deal with it?  The question becomes: is there any way of…

Overcoming Uncertainty

Sue’s had a good day/bad day.  It’s hard sometimes to remain optimistic when things aren’t going well.  I’ll let her tell you the story that ends with…

It Might Be That Pony

From 2017

We continue to talk about scotomas/blind spots in terms of Sue’s geographic atrophy.  Do you know where the term came from, what the word ‘geographic’ means? In seas of healthy tissue, there are…

Islands of Damage

The title of this page tells you what Sue has written about. There is also a link in it to a summary of ALL research & developments for both dry and wet AMD as of June 2018.

In the Pipeline for Wet AMD

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

When Sue wrote this, much of the country was being held hostage by high temperatures in locations that were not accustomed to them.  Since AMD is often found in those of us of a ‘certain age’, Sue shares some warnings about and tips to prevent dangers from a…

Heat Wave!

From 2016

We love it when you leave comments on our pages and posts.  Sue addresses the most recent one and offers Cookie Monster some advice.

Cookies!

From 2017

A diagnosis that threatens our independence naturally brings fear.   We can, however, establish and maintain INTERdependence which is “dependence of two or more things or people upon each other.”  Have you done something for others, for your community?  It’s never too late to be the…

First Link on the Chain of Kindness

Sue writes about the challenges we all have.  You’ve probably heard this…

When the Going Gets Tough…

2016

How much time do you have on your hands especially if you are dealing with low vision?  How do you decide what to do with that time?  Sue gives us some advice from DBT.

How’s Your Balance?

 

Unfortunately, not all clinical trials give us positive results.  The lampalizumab/”lamp stuff” for dry AMD that we’ve talked about before has failed phase 3.  They’ll be looking at the data to see if there’s something they might have missed. As for the other proposed treatment for dry AMD, the Lumithera Photobiomodulation device, although it is listed on the US clinicaltrials.gov website, it’s listed as “not applicable.”  That’s not necessarily bad news, it means that for those of with dry AMD, we are…

Keeping Our Eyes Open

From 2017

Are you concerned that being visually impaired means you won’t be able to travel & take vacations?  Sue’s found several articles with suggestions, including one where you can go…

Eating Our Way Around the Globe

Sue’s been working in her basement to deal with things that have accumulated over the years.  She’s taking a walk through memory lane.  Too much time there can be counterproductive so she offers some advice about things we can do to be more active, even if it’s storytelling.  We all have…

Stories to Tell

From 2017

One thing Sue and I have in common with many of you is our love of furry critters especially dogs.  You might not expect that there’s anything connecting IBM with them but read on to find out about the…

Puppies!!!