Sue’s New Page 6/16/2017

Sue continues to search for information about how much of her sight she could possibly lose and shares some early information about the extent of both central and peripheral vision (more to come).  On another topic, she’s not the only one who says “if we have to be losing our sight, this is the best time in the history of man to be doing it.”  Not only are there injections to manage the symptoms of wet AMD, we have a lot of visual aids – computer and non-computer – plus the body of scientific knowledge & research is growing by leaps and bounds.  You may recognize this page’s title from the X-Files TV show.  Should we have the “MD-Files”? ::smile::

The Truth is Out There

  • Categories: Cognitive Therapy, Sue’s Musings, The Science Stuff
  • Keywords: central vision, counting positives, DBT, ending blindness, peripheral vision

 

Sue’s New Page 6/14/2017

Whoops, this should have gone out 2 days ago…sorry!

There is a company in the UK who has created low vision goggles that they say gives many of the functions of a CCTV that you can wear.  Here’s more information in this page.  We’d love to have a volunteer to test this and give us a report.

UK Volunteer Wanted!

  • Category: Low Vision Aid, Technology
  • Keywords: Give Vision, Sight Plus, wearable tech, wearable technology

Vision Loss: The Early Pages 6/12/2017

Title & date first published

  • 33.  Three States of Mind  March 30, 2016
    • Categories: Cognitive Therapy, Sue’s Musings
    • Keywords: DBT, dialectic, emotional mind, rational mind, wise mind, three states of mind, turn the mind
  • 34.  ChaChaChanges March 30, 2016
    • Categories: Low Vision Aid, Self care, Tips for living with low vision
    • Keywords: adapting the house, bump dots, colors, contrast, habilitation, rehabilitation, using the microwave

Do you have suggestions for keywords? Please let me know here or send me an email at light2sight5153@gmail.com.

Sue’s New Page 6/10/2017

One of the limitations of our website is that it doesn’t easily allow people to interact with each other (there is the option of the reader leaving comments but everyone doesn’t see them necessarily, it’s a way to be in contact with Sue & me).  We have a Facebook group which at the moment has 663 members (growing steadily) where we can easily have conversations.  Last weekend we had a very lively one about how our friends and loved ones react to our vision loss or fears of vision loss.  Sue’s not in the group because she is so busy but I do keep her appraised of what’s going on.  She shares her research and experience on the topic.

“I Don’t Want to Go There!”

To find out more about the Facebook group, click here.

Sue’s New Page 6/9/2017

In September of 2016, National Geographic had as its cover story “Why There’s New Hope About Ending Blindness”.  Of course, we hope that means an end to AMD which is only 1% of the world’s cause of the total picture.  What about the other 99%?

Avoidable Blindness

  • Categories: Future, Prevention, Research, Statistics
  • Keywords: Audacious Goal Initiative, Audacious Goals Project, Lions Club, Nat Geo, National Geographic, SEE International, Walmart Optical

Sue’s New Page 6/7/2017

Sue sees her retinologist regularly unless she has a change that she’s concerned about in which case she sees him more often.  Her geographic atrophy (advanced AMD) is bad enough that she wonders if the good thought is that maybe her vision loss has stopped.  But then there’s the bad thought.

Good Thought, Bad Thought

  • Categories: Dry AMD, Testing, The Science Stuff
  • Keywords: central vision loss, choroid, dry AMD, eccentric viewing, geographic atrophy, photoreceptor, retinologist, RPEs, tomography, wet AMD

Vision Loss: The Early Pages 6/6/2017

Title & date first published

  • 29.  Yesterday March 27, 2016
    • Categories: Cognitive Therapy, Self care, Sue’s Musings
    • Keywords: ACCEPTS, comparison, contributing, DBT, pity

Do you have suggestions for keywords? Please let me know here or send me an email at light2sight5153@gmail.com.

Sue’s New Page 6/5/2017

One of our readers asked a question about where to get the telescopic glasses that Sue uses to watch TV & do similar tasks.  In tracking down the MaxTV glasses by Eschenbach, Sue found a pair that was quite a bit cheaper so she ordered them. This is her review of them and some information about several text-to-speech readers.

Comparison Shopping

  • Categories: Low Vision Aid, Sue’s Musings, Technology, Tips for living with low vision
  • Keywords: assistive technology, Dan Roberts, Daniel Roberts, Enhanced Vision, Eschenbach, KNFB reader, Living Well with Low Vision, Max TV, MaxTV, telescopic glasses, telescopic lenses