Last December, Sue and her husband had a chimney fire which started her to think about safety for those with visual impairments. She shares tips on how to…
Author: light2sight5153@gmail.com
Sue’s New Page 4/9/2017
Considering that the original Star Trek TV show debuted in 1966, we’re guessing most of you are familiar with one or more of its incarnations. When you read the title below, how are you pronouncing ‘futile’? Click here if you need a refresher! ::grin:: Why is Sue using that iconic phrase?
Sue’s New Page 4/8/2017
In the Facebook group, we are discussing ways to monitor our vision for changes. The KeepSight website is an alternative to the Amsler Grid. No matter what method you choose, Sue admits she’s not so great with self-monitoring.
Sue’s New Page 4/7/2017
Yes, we’re still behind in ‘real time’ – Sue wrote this before Christmas 2016. It’s not about things…read on to find out what she DOES want.
Sue’s New Page 4/6/2017
I sometimes share with Sue what I read in other Facebook groups. This particular interaction was about conversations where there was a lot of anger being expressed. She gives us another analogy, in this case it’s that of a car that represents our emotions and how we need to be in…
Sue’s New Page 4/5/2017
I’ll just allow Sue to explain THIS analogy but after you read it, can you say what type of ice cream cone your life will be like?
Sue’s New Page 4/4/2017
Sue’s been taking yoga classes for many years. In one class, the yogini (teacher) talked about the third chakra (chakras are thought to be “centers in Hinduism, Jainism and Buddhism thought” according to Wikipedia). It’s supposed to be concerned with self-motivation and purpose. Sue wonders if she’s not being recruited for a clinical trial because of a problem in her…
Sue’s New Page 4/3/2017
Sue and I are both in our early 60s (almost mid-60s) so I guess we’re ‘older folks’ (lots of other phrases that are used but we’ll use this one for now ::grin::). Sue has lots of friends who are ‘younger folks’ and she tells us how we can…
Highlight: What foods should I be eating for good eye health?
Nutrition for Good Eye Health – the Basics
Eye Healthy Nutrients
Click here for a good place to start to learn about aspects of nutrition that have been recommended for good eye health.
<–Click on the photo for a larger image.
Click here for more details from AOA (American Optometic Association) about this infographic.
Click here for a printable grocery list.
Diet Plans for Good Eye Health
-
-
-
-
-
- not listed in any particular order; we aren’t making any recommendations & we make no money on the sale of any of the products below.
- Macular Degeneration Diet and Prevention Plan by Dr. Stuart Richer, OD, PhD, Ocular-Nutrition Laboratory in DVA Medical Center Eye Clinic, North Chicago, IL
- video: Stuart Richer talks about his lutein & zeaxanthin study
- Eyefoods has a diet plan that you can learn about in their book, on their website, Facebook page or blog
- Eat For Your Sight Cookbook from the AMDF (American Macular Degeneration Foundation), the cookbook is available here or through amazon.com
- Mediterranean Diet for eye health
- Anti-inflammatory Diet
- Cure AMD, proposed eating plan (based on ‘ancestral diet’) to prevent AMD and reverse it in its early stages. I’ve corresponded with the author & expressed my concern about his use of the word ‘cure’. He said he believes so strongly on his research that he could not use any other title.
-
-
-
-
-
-
- Disclaimer: We have a standard disclaimer that no one reads ::smile:: so I just want to remind you that we say in it:
- Any information, books, products or any other materials at My Macular Degeneration Journal/ey are not intended to treat, diagnose, cure or prevent any disease, disorder or health condition, and is provided for educational purposes only.
- Always consult your doctor with eye health questions about your specific medical conditions and before starting any diet, exercise, or supplement program.
- Disclaimer: We have a standard disclaimer that no one reads ::smile:: so I just want to remind you that we say in it:
-
Go to the Top
Highlight: Where can I find books in formats for people with visual disabilities?
Sources of Books
- Formats: Braille, large print, e-book and audiobooks; some services for free if you qualify
- US Library Service provides ‘Talking Books’ in Braille & audio; you need their e-reader
- US BARD (Braille and Audio Reading Download) also from the US National Library Service; you can read them on an Apple or Android device or app
- US BARD & BARD Mobile: YouTube video talking about the service
- US & Canada Sources of large print & Braille reading materials
- UK RNIB Overdrive: ‘Talking Books’ by digital download
Worldwide
- Worldwide Kindle e-book readers: which is the right one for people with low vision?
- Bookshare:
- US BookShare: 300,000+ titles including all current and recent NY Times bestsellers; free for students, $50/year with $25 setup fee. Subscriptions are available for organizations.
- United Kingdom: similar subscriptions to that of the US site
- India: for subscription prices, check the website
- Bookshare International/Without Borders for 70 countries; check the website for the countries, available books & cost
- Daisy (Digital Accessible Information System) offers audio books, magazines & newspapers:
- DAISY books can be heard on standalone DAISY players, computers using DAISY playback software, mobile phones, and MP3 players (with limited navigation). DAISY books can be distributed on a CD/DVD, memory card or through the Internet.
- YouTube video shows what their digital books look like
- Source of Daisy books for Daisy reader, computer, tablet or smartphone
- At the bottom of this page, there’s a long list of software that plays Daisy books
- Worldwide Overdrive: borrow e-books & audiobooks from local librarie
- Many countries of the world BookBub: Free and inexpensive e-books covering many genres
Sue’s pages about books
- Sue’s page about Talking Books and Bard
- Sue’s page about BARD
- Sue’s page about various sources of e-books around the world
Did we miss any? Please let us know if we did.
Sue’s New Page 4/2/2017
Sue wrote this in November of last year, a year that included one of her ‘unlucky’ numbers. When she lists all the things that went wrong, it seems that she’s not had much help from…
Sue’s New Page 4/1/2017
Continuing on the theme of retirement, Sue talks about what to do with your time.
Sue’s New Page 3/31/2017
UPDATED: Top 10 Low Vision Aids for AMD
original post February 2016, updated March 2017
I found this article to be a good example of the kinds of non-computer low vision aids that are currently available but it is in no way all-inclusive. I’m guessing that these are products that company specializes in but are available elsewhere. Check out our Resources page under Coping with Low Vision for more links to low vision aids.
– Linda
Sue’s New Page 3/30/2017
In our parents’ generation, AARP (American Association of Retired Persons) would ‘find’ a person when they turned 60. In our generation, you felt old when they ‘found’ you at age 50 so it’s not just for retired people. Sue talks about this organization and about retirement, in general, whether it is forced or voluntary. Plus she found a good article in AARP’s magazine about…
Sue’s New Page 3/29/2017
What do a ‘bionic eye’, gut microbes, and the complement activation system have in common? Sue’s written about them in this page! ::grin::
Sue’s New Page 3/28/2017
Sue and many of you have Age Related Macular Degeneration (AMD) where the word ‘age’ brings its own set of issues such as depression.
Sue’s New Page 3/27/2017
If you’ve been with us long enough, you know that Sue and I are both educators who place an emphasis on finding and sharing accurate information. It’s no wonder that Sue reacted as she did to this…
PS If you ever find something on our website or in our Facebook group that you question or know to be inaccurate or misleading, PLEASE LET US KNOW!
Sue’s New Page 3/26/2017
What was your reaction to your diagnosis? Sue shared that she had panic attacks when she realized that her vision was worsening. Sue talks about emotional regulation and what it means to you and the people around you.
Sue’s New Page 3/25/2017
One of the challenges Sue’s had since her vision deteriorated is that of getting transportation. Some of her drivers are easier to deal with than others & that’s where she tells us…
Sue’s New Page 3/24/2017
Sue has talked about some of the smells that take her back to her childhood (eg, Vicks VaboRub is one). In this page she talks about another that relates to a hobby her dad had (as did mine), one that surprisingly a person can continue even with impaired vision.
Sue’s New Page 3/23/2017
Moving through the process of declining vision is like going through the stages of life. When we began this project, Sue was an infant who was given ‘toys’. She’s learned to use them and says…
Sue’s New Page 3/22/2017
When it comes to our eyes, we want to know that we are receiving the best possible care. Sue tells us about an article in US News that ranks the Best Hospitals for Ophthalmology in the US. This article also lets us search for the best doctors, hospitals and children’s hospitals for various specialties.
Sue’s New Page 3/21/2017
In her second (and final) page, Sue talks about the phases of clinical trials and what to know about each one.
Sue’s New Page 3/20/2017
Yesterday Sue talked about the difference between a legitimate, scientific clinical trial and one that is not. Today she gives us a short lesson in what to look for in the legitimate ones.