Author: light2sight5153@gmail.com

By now, we’ve all heard this week’s news about 3 women being blinded by questionable stem cell ‘treatments’.  Sue is waiting for a ‘real’, legitimate stem cell clinical trial and she writes about the difference between the two.

In the News

Sue wrote this page last December about how the reports of stem cell treatments have turned them into modern ‘snake oil’ (ie, treatments with questionable or unverifiable benefit).   We decided to move it up for publication because of the recent news report about 3 women who were blinded by stem cell treatments.

Beware Snake Oil

Happy St. Patrick’s Day!  This is a page Sue wrote for Mardi Gras and she mentions St. Patrick Day, both holidays with rich traditions.

Let The Good Times Roll!

May your troubles be less and your blessings be more

And nothing but happiness come through your door

 

Sue gets as excited about the MaxiAids catalog as she did with the Sears toy catalog when we were young!

My Wish List

Having a disability is expensive in terms of health care costs, interruptions in time on the job, expense of assistive devices, etc.  It pays to check out the resources that are available.

Wake-up Call

Are there preconceived notions about the happiness and capabilities of those who are blind?  Yes!  It’s up to us to teach others.  Instead of being part of the problem of misconceptions, be…

Part of the Solution

What does Bingo have to do with altruism?  Read on…

Bingo!

One of the concepts that Sue uses and teaches is mindfulness.  Basically it means to focus not in the past and not in the future but in the…

Here and Now

Sue hadn’t written for a few days which got her thinking about how living with a chronic illness like AMD often has a period of high anxiety and frantic activity followed by a period of relative stability.  Not that her eyes have gotten any better, she’s just called…

A Truce

You know Sue likes quotes and there are quite a few of them in this page about…

The Meaning of Life

When Sue has down time, she likes to DO something.  In this case, she’s been playing the video game Panda Pop.  It’s no surprise (to me) that she’s found life lessons in…

The Games People Play

Sue’s talked about how her transportation issues have her off her preferred schedule (ie, she’s not a morning person) and has her sleep cycle out of whack.  How does sleep affect the brain? For that, we get a…

Latin Lesson

Sue’s been working through Prevent Blindness’ great webpage called Guide Me (if you haven’t gone there yet, I highly recommend it.  There’s a link in this page).  She’s trying to figure out what a hyperacuity chart is and where she can get one (I’m still looking, too).

Hyper What?

Sue reveals her theory that the woman written about in the poem with the words “When I am an old woman I shall wear purple, With a red hat which doesn’t go, and doesn’t suit me” is a woman who has AMD and can’t tell the difference between purple and red! ::grin:: Or is she just an eccentric old woman like Sue?

When I Am Old

 

This page is from last October! How did we get so far behind? Sue was afraid she’d run out of things to write about so we didn’t publish pages daily for a time.  Has that happened? Nooo, it has not! ::grin::  In this one, Sue writes inspiring words about why it’s good to talk about our vision.

My Soapbox

Sue’s been working through the information in Prevent Blindness’ Guide Me resource.   There’s lots of information in the personalized guide including some statistics, eg, 50% of the people with dry AMD die before experiencing significant vision loss.  We know that is not always the case but…

Sometimes It Happens

After a short rant about the lack of AMD education, Sue talks about some of the symptoms of visual problems including ‘perceived flashes of light’ that some people who have them call…

Zigzags

We’ve had a salmagundi and a mess of topics, now we have another title for a collection.  In this case, Sue writes more about her interactions with Amazon and about the Guide Me page from the Prevent Blindness organization.

Motley Collection

Unfortunately, there are people who prey on those with disabilities.  Sue’s not worried now but things could change if her vision worsens.   There are techniques you can learn to protect yourself including something called Cane-Fu (designed for seniors who use canes for walking but a white cane would work, too).  Are you ready to try some…

Kung Fu Fighting

Both of our fathers had AMD at a time when there was nothing on the horizon in terms of help for them.   We each had a parent who had a form of dementia (my mother and her father) and we know what happens when one’s brain is diseased – it is terrifying.  There are people around us who are in pain and have life-threatening illnesses.  Taking all that into account and knowing that she’s otherwise healthy, Sue says she is lucky because she has…

Hope

“Hope is being able to see that there is light despite all of the darkness.” – Desmond Tutu

 

Occasionally we get people who tell us that they have cured themselves of macular degeneration.  In this case we had someone who said he’d improved his vision & wet AMD significantly through nutrition (food & supplements).  While we hope it is true for him, unfortunately it doesn’t seem to work for everyone.  Sue gives us her thoughts about this.

I Am Not a Doctor

 

 

Here’s another page with various topics: eyeglasses, following vs. leading, new features of the recent iPad update, and payment options for online purchases.

Mess of Topics

What a year! Since Sue and I recently wrote about the 1st year anniversary of coming up with the idea for the website, we thought it was time to hear from someone who has supported our efforts.  Here’s a page from our very first website subscriber Sharon Hynes. She’s also active in the Facebook group (it was started in May).

Happy 1st Birthday, Website!

Sue’s talked about her love for Amazon in the past.  She’s gotten a lot of what she needs online but how accessible is their website?  How is their customer support? This is about her experience

Online Shopping

Sue has written about meditation and prayer as activities that help a person physically and mentally. What happens when a person prays for someone else?

Power of Prayer