Category: Sue’s New Page

The last page of the series.  The blizzard threw off her routine which is important to Sue and may help you to fill your days with meaningful activity.   That allows Sue to continue to be…

Adventure Girl

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

As we continue with the ‘Winter is Coming’ series, Sue writes about her experience of getting out in a March blizzard in Pennsylvania.  Many people are afraid of doing that because of fear which is something that can be overcome; she shares some ways to work on it.  She says it’s not a big deal but it sounds impressive that…

I Survived the Blizzard of ’17

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

Sue enjoys Winter.  She likes to downhill and cross-country ski.  For those of us who don’t share her enthusiasm, she offers some tips to keep us warm and safe if we’re headed for another…

Real Winter

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

If you have read the books or are watching the TV series Game of Thrones, you know the phrase ‘Winter is Coming’.  I’m ‘borrowing’ the phrase for some pages that Sue wrote in March of this year but I didn’t publish them then (long story).  For those of us in the Northern Hemisphere, it is indeed true that Winter is Coming.

There are well-meaning people who offer suggestions that they think will solve our problems.  One of Sue’s friends told her that there were glasses out there that would enable her to drive again.  Not true, unfortunately.  So what about these…

Funny Glasses

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

It’s been almost 2-1/2 years since the vision in Sue’s first eye started to decline.  She has discussed her AMD with family members several times since then and yet, at a recent family gathering, she got the “you don’t look/act blind”.  She wonders how many more times she has to subject her nephews to the…

AMD 101 Lecture

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

Sue’s adventure with 2 puppies continues.  She reports from…

The Puppy Zone

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

I asked Sue to try the free Apple app Seeing AI which caused quite a bit of excitement when it was released.  It uses the phone’s camera to allow you to identify the world around you, including identifying products, currency and people plus providing text-to-speech capabilities.  She found its scene identification feature (still being tested by the developers) to be good  but not always – it told her that her husband’s shoes were…

A Cat Eating a Shoe

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

Sue’s ‘Lost’ Pages are ones that for various reasons never got published, they slipped between the cracks.

The child of a friend of Sue’s has a malformation of the optic nerve. They don’t yet know what she sees since she is still young.  She’s a handful now which Sue attributes to ego strength, something that will be helping this child in…

Taking the World by Storm

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

I’m reposing this from December 2016.

The countdown to Christmas is in full swing.  It can be a happy time but it can come with issues.  Sue writes “Surviving the holidays can be rough for anyone but it can be harder for us folks with ‘challenges’. ”  Through it all we should…

Accentuate the Positive

Spoiler Alert – why should you read Sue’s Journal Pages?

After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends.   We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.

We’ve compiled the first part of a series of Sue’s Best Pages.  If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.

Sue’s Best Pages: Part 1

I’m reposting this from 11/20/2016.

This Thursday in the US is Thanksgiving Day which many people consider to be the beginning of the holiday season. For some people, the holidays are not times of joy and happiness.  Sue talks about some of the myths that may behind some of the reasons and she offers some ideas to combat…

The Holiday Blues

People with vision impairment have a particular set of challenges but there are also ‘normal’, mundane problems that aren’t related.  Those of you who have been following Sue’s journey know that not long ago Sue’s furkid Beastie Baby/Lily passed away.   Sue is now facing the ‘normal’ challenges of becoming a puppy mother because this past weekend, she got not 1 but 2…

New Puppies!

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s post-vacation days have included  a bout of a stomach bug and tons of work.   She had  a client with a physical impairment and told them “We each play the cards we are dealt. They may not be a winning hand, but if we play that hand with skill, we can still win in our own way. ”

Play the Cards We Are Dealt

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s back from her vacation and back to looking at what’s new in AMD research.  Unfortunately, some of that news is not good (Lampalizumab study).  Other news is more hopeful.  It’s back to “normal” now that she is…

Home Again

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue watched as the Coast Guard responded to a medical emergency on her cruise ship and was proud of what she saw.  Even though her vision loss caused her to miss some things, she writes “If you have the time, money and inclination to cruise, don’t let a little vision loss hold you back.”

Postcard from the Cruise Part 1

Sue was able to be mostly independent on the ship after she learned the routes to the various decks.  There were times when it was hard for her to find her husband so they worked out a system to deal with that.  All in all, she concludes that the trip was good.

Postcard from the Cruise Part 2

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Did I have too much Halloween candy last night?  Not enough coffee?  Have the frigid temperatures frozen my brain?  Who knows but I’m sorry, the previous post had a ‘bad link’ so if you have clicked on “Yeah Team!” you got ‘page not found’!  This one will work, at least I hope it will ::grin::

Sue is a confident person but she does get nervous when she knows that people depend on her.  She’s been asked to participate in a project as second in charge and she accepted with the understanding that if her vision worsens, she may not be able to continue.  So let’s offer a…

Yeah Team!

Sue & her husband are on a cruise, a trip that she set up faster than normal so she didn’t have a lot of time to do research.  So while she’s sunning on the top deck of the ship (wearing her good sunglasses, of course), you can read about cruises for those with visual impairments. ::smile::

Cruisin’

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Another phishing attempt did not ‘catch’ Sue and she shares tips with us so we don’t get caught.  She also talks about optimism and shares thoughts from Dan Roberts “Roberts emphasized there being so much reason for optimism with all the tools and medical breakthroughs.” Sue says “Know someone without knowledge? Someone without hope? Give him…

Some of Yours

I thought that Sue was already on her way to her vacation when I got this page with information from two more articles! ::smile::  This is Sue saying “Two more things…

Before I Go

** It may be a few days before there are new posts.  Sue is on vacation and I’m having surgery tomorrow Nov. 3rd and will need some recuperation time.  I’ll be back as soon as I can.  Sue will be back on November 12th, 2017.

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Did you know that there are…

Three Types of Wet AMD

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue is a confident person but she does get nervous when she knows that people depend on her.  She’s been asked to participate in a project as second in charge and she accepted with the understanding that if her vision worsens, she may not be able to continue.  So let’s offer a…

Yeah Team!

Sue & her husband are on a cruise, a trip that she set up faster than normal so she didn’t have a lot of time to do research.  So while she’s sunning on the top deck of the ship (wearing her good sunglasses, of course), you can read about cruises for those with visual impairments. ::smile::

Cruisin’

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Two pages today!

Sue has a number of devices to help her with various tasks at work. She has depended on her CCTV.  It died and so she is…

Limping Along

Without her CCTV, Sue had to find some other way to read articles.  She’s written about the app NaturalReader in the past that converts text-to-speech.  It read to her an article that says “The article suggests doctors are not proactive enough in the early stages of the disease [AMD].”  NaturalReader does a great job most of the time but sometimes it can be…

Diffy Cult

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue’s BIG on exercise and she’s not the only one.  In this page, she looks at the connection between exercise and depression.  She writes “To begin with they [researchers] found an exercise a day keeps the psychiatrist away.”

An Exercise a Day

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue loves it when she can find research to support what she has been telling us.  In this case, it’s about the benefits of exercise, including…

Come Dance with Me – Again

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue has news from the stem cell facility about one of the studies she is signed up for.  She also shares some advice to…

Drink Your Fluids

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue continues to talk about the stem cell trials that she has been following.  One called PRELUDE is one she is signed up for where they will be evaluating several outcomes.  She reminds us that there is…

Progress Daily

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.

Sue has been on the waiting lists of future research studies, some for quite some time.  The path of research is not always smooth and so timelines are often changed.  She writes about one of the stem cell studies and how a stem cell delivery system will use…

Secret Passages in the Eyeball

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you read “In the Beginning”.