Sue continues to talk about the stem cell trials that she has been following. One called PRELUDE is one she is signed up for where they will be evaluating several outcomes. She reminds us that there is…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue has been on the waiting lists of future research studies, some for quite some time. The path of research is not always smooth and so timelines are often changed. She writes about one of the stem cell studies and how a stem cell delivery system will use…
Secret Passages in the Eyeball
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Why should we be excited about a breakthrough in the treatment of diseases other than AMD? Sue writes “What I am saying is every breakthrough in one aspect of vision research might lead to breakthroughs in other areas and – drum roll please! – there has been a breakthrough!” That means…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
The eye is a complex and remarkable organ. We’ve talked about the RPE cells which take care of the photoreceptors which are the rods and cones that give us sight. One of their jobs is to feed them, another is…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
One of the hardest things to deal with for many who have had to stop driving is that you cannot make last minute adjustments to your schedule. Sue planned for a full day of activities but got sick. She writes “I cannot make the marginal call any more. Sometimes I need to use a little discretion.” That means she sometimes has to…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue’s written quite a bit about the role of retinal pigment epithelial (RPE) cells in the development and progression of AMD. She clarifies that RPEs are not just in the macula, she writes “RPEs are under all of the photoreceptors and support all vision, not just central vision.” That means that RPEs are…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Those of you with wet AMD – especially those of you who are getting injections of anti-VEGF medications – are praying for the time when you will not need them or you will not need them as often. When the research on a topical treatment ‘failed’ (Squalamine eye drops used with Lucentis injections to reduce the frequency of injections), the news was disappointing. However, as with many studies, there was a secondary goal which was to improve visual acuity. About that, Sue writes that “31% of the people with ‘classic’ wet AMD lesions gained 11 letters on the chart!” She says…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
We’ve had several people ask how Sue can produce so many pages for the website (almost 500!) as well as prepare written reports for her various jobs. She has geographic atrophy which is the advanced stage of dry AMD which means she has scotomas/blind spots in the central vision of both eyes. She writes about her process which has produced some funny autocorrect and speech recognition interpretations such as ‘a broken ankle’ becoming a…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue’s written several pages about atrophy that can occur in the periphery. She says “Can’t change your genes just yet at any rate. Cannot get any younger. That leaves taking care of your circulatory system. Do what you can to improve it.” We hope you will also take this advice…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
Sue continues to dig through the article about geographic atrophy. Would you want to know where the atrophy will spread? There’s a test for that and tests for wet AMD and a test for dark adaptation.
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you read “In the Beginning”.
My Macular Degeneration Journal 