Sue’s New Pages 8/31/2017

Sue’s Android phone is new & she’s learning how to use the magnifier.  She’s also learned more about how genetics can impact one’s treatment for wet AMD.

This and That

What is gene editing & why should we know about it?  Sue says “How this relates to AMD is sort of basic. We know AMD is a genetically based condition. Change our genetics and we may eliminate the disease.”

Re-educating Our DNA

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/30/2017

A large study which started in 1987 showed some relationship between macular degeneration and sunburns in youth.  Wear your sunglasses, put on sunscreen and…

Rock On

Sue no longer drives but she decided that she should renew her driver’s license for several reasons.  She says she spent the morning acting like…

Someone I Am Not

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Posts 8/29/2017

Sue is inquisitive, we know that.  She’s been wondering if there is any information that we can get when we know the ending of a medication name, specifically the drugs ending in -ximab or -zumab.  Turns out there is and you can…

Thank a Mouse

There is so much information out there about AMD that it is hard to keep up!   Read what she found in her…

Piles of Articles

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Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/28/2017

As you know, Sue has advanced dry AMD, specifically geographic atrophy. In the next several pages she writes about wet AMD.  With the use of anti-VEGF injections, there’s been…

A Dozen Years of Progress

What was done for wet AMD before anti-VEGF injections?  Here’s a…

Blast From the Past

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/25/2017

Sue says “I know I sound like a broken record, but there is much reason for hope. Together we WILL break the back of this thing.”  She’s referring to some of the experimental technology in the works including contact lenses for AMD.  She also discusses a study about lutein.

Holy Steve Austin, Batman!

One of the most popular text-to-speech apps is NaturalReader which is available for Android and Apple devices as well as or Windows 10.  Sue is impressed.

Let Me Read to You

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/24/2017

Sue was finally able to get to New York City.  She used her monocular to view art at The Cloisters and animals at the Bronx Zoo.  Read about her overall experience of visiting…

Lions & Tigers & Bears…Oh My!

We both try to keep up with the current findings in the field of AMD.   Sue talks about what she found by…

Reading Modern Retina

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/23/2017

One of things that the recent eclipse brought out in people is intellectual curiosity.  How can we foster that curiosity despite visual impairment?

Keep On Learning

Sue says “We are very often good pickins for the quacks and scam artists of the world.”  There have been stories of Medicare fraud related to eye care and experimental treatments costing thousands of dollars.  Sue urges…

Keep Your Heads

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/22/2017

Sue says “Remember the more fit you are, the healthier you will be. The healthier you are, the longer you keep your independence. Water exercise can help you to achieve these goals.”  So…

Everyone Into the Pool

Continuing with the theme of becoming and staying healthy through exercise, Sue says…

Get Out of That Chair

Start at the beginning…

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/21/2017

I’m just going to let you read the page to figure out where Sue got THIS idea!  Is it time to take away her Internet access? ::smile::

Counting Toe Hairs

We’ve talked about audio description for TV and movies.   There is also audio description available for some live performances.

Enjoy the Show

Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD?  We recommend that you click here to read In the Beginning.

Sue’s New Pages 8/20/2017

Sue’s frustrated.  She says “I miss my freedom and flexibility of movement. I want to be able to go where I want to go and do what I want to do when I want to do it. And I don’t want everything I do to be such a damn project!”  Then she feels guilty because she has so many great & helpful people in her life. There’s DBT advice for this but she admits she has…

Some Learning to Do

Visual impairment can change the concept of livability in terms of what resources are available such as access to transportation and accessible features such as audible traffic signals.  Sue found some cities that might be the…

Best Places for Us to Live