Sue was finally able to get to New York City. She used her monocular to view art at The Cloisters and animals at the Bronx Zoo. Read about her overall experience of visiting…
We both try to keep up with the current findings in the field of AMD. Sue talks about what she found by…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you click here to read In the Beginning.
One of things that the recent eclipse brought out in people is intellectual curiosity. How can we foster that curiosity despite visual impairment?
Sue says “We are very often good pickins for the quacks and scam artists of the world.” There have been stories of Medicare fraud related to eye care and experimental treatments costing thousands of dollars. Sue urges…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you click here to read In the Beginning.
Sue says “Remember the more fit you are, the healthier you will be. The healthier you are, the longer you keep your independence. Water exercise can help you to achieve these goals.” So…
Continuing with the theme of becoming and staying healthy through exercise, Sue says…
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you click here to read In the Beginning.
I’m just going to let you read the page to figure out where Sue got THIS idea! Is it time to take away her Internet access? ::smile::
We’ve talked about audio description for TV and movies. There is also audio description available for some live performances.
Are these pages the first ones that you’ve read in Sue’s Journal of her Journey with AMD? We recommend that you click here to read In the Beginning.
Sue’s frustrated. She says “I miss my freedom and flexibility of movement. I want to be able to go where I want to go and do what I want to do when I want to do it. And I don’t want everything I do to be such a damn project!” Then she feels guilty because she has so many great & helpful people in her life. There’s DBT advice for this but she admits she has…
Visual impairment can change the concept of livability in terms of what resources are available such as access to transportation and accessible features such as audible traffic signals. Sue found some cities that might be the…
Sue keeps busy outside her home. She says “I am cognizant the time is coming I will be home with…”
She’s talked about audio description for live and recorded entertainment. How do you set it up? Maybe put out an advertisement saying…
It was February 2016 when Sue’s vision declined such that she had to take a break from her ‘normal’ life to work with vocational rehabilitation staff who helped her get the devices & training that she needed for her ‘new normal’ life. More than a year later, some of the things she learned to do differently – such as shopping at Walmart – result in an…
There is power in numbers and the number of people with AMD grows as people are aging and living longer. We know we are the good guys who can encourage everyone, especially older folks, to have thorough eye exams. Together we are the…
Sue tells us about 2 women in the field of AMD. Both are involved with stem cell research.
Sisters Are Doin’ It For Themselves
Not everything you hear or read about AMD is accurate or up-to-date. We found one particular video clip where the information they shared was just wrong. And be aware that some of what is out there is…
One thing that is not always communicated to patients is that all AMD starts as dry. Wet AMD is one form of advanced AMD; geographic atrophy is the advanced form of dry AMD. Why is it that so many people’s first diagnosis is of wet? Can you have both forms at the same time? Read more about this as well as get an update on what’s going on with the clinical trial that Sue is waiting to be part of.
How much can using our other senses help when we have vision impairment? Sue offers some suggestions on using our sense of touch.
Competence is important to Sue, whether it is that of others or of herself. She says “Since I had my vision loss, I have an underlying uneasiness about becoming incompetent in my job. When will it happen? Will I recognize it when it happens? Will people cover up for me? And if they cover up for me will I leave my profession with a tarnished reputation? I never had these thoughts before but I have them now.” To her, competence is about…
Her shared ride transportation continues to be a problem. Also, she wonders why there isn’t a book “Miss Manners for the Proper Low Vision Sufferer”. On a more positive note, she has her first visually impaired client. It’s important to remember that little irritations are the stuff of low vision and…
My Macular Degeneration Journal 