Whoops, I need to correct this sentence in my previous post: “Both [Bob & Sue] have been accepted into clinical trials investigating treatments for advanced AMD/Geographic Atrophy (GA). ” Sue has not been accepted into clinical trials at Wills Eye Hospital, she has been referred. Unfortunately, that makes a difference.
Category: Sue’s New Page
New Guest Author 1/14/2018
Sue and Facebook group member Bob O’Connell have the same highly-respected ophthalmologist Dr. Carl Regillo at Wills Eye Hospital in Philadelphia, PA. Both have been accepted into clinical trials investigating treatments for advanced AMD/Geographic Atrophy (GA). Read Bob’s story to find out how he got to this point and how he’s come to a decision about one of the clinical trials. And find out what he means by…
We are looking for people to write for our project. All you have to do is to write your story and a short biography, send it to me and I will edit it and put it into the appropriate format for the website. You may be surprised at how good it feels to share how life has been for you, the good news and the no-so-good news, since your diagnosis. These stories give assure others that…
YOU ARE NOT ALONE!
Our Guest Authors: Their Stories
New Guest Author 1/13/2018
A few days ago I published a post from Facebook group member Vickie Hoecherl who compiled quotes from a recent article: Do our choices or our genes impact the development & progression of AMD? She has written about her journey with AMD for our Guest Authors section. You find her story here…
We are looking for people to write for our project. All you have to do is to write your story and a short biography, send it to me and I will edit it and put it into the appropriate format for the website. You may be surprised at how good it feels to share how life has been for you, the good news and the no-so-good news, since your diagnosis. These stories give assure others that…
YOU ARE NOT ALONE!
Sue’s New Page 1/11/2018
Sue has been very busy so there hasn’t been a page published every day. She is facing a major life decision, one that she would have eventually faced but has come sooner partly because of the changes in her vision. She asks the question “…how do we know when it is time to give something up? A job, a car, whatever.”
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 1/8/2018
It’s a new year. How optimistic are you that 2018 is going to be a year when there will be great strides in our understanding of how the eyes work and knowledge of what can be done when they don’t work properly? Sue writes “So, optimistic about 2018? Oh, yeah. You just gotta believe. Every small step is progress. Once again: this is the best time in history to be going blind.” Read why she is…
Coming soon…A new Guest Author page with the highlights of an Award Lecture from December 2017: “Macular Degeneration Epidemiology: Nature-Nurture, Lifestyle Factors, Genetic Risk, and Gene-Environment Interactions – The Weisenfeld Award Lecture”.
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 1/4/2018
Sue tests the currency reader, barcode scanner and handwriting reader in Seeing AI.
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 1/3/2018
Sue continues to try the text reading features of Seeing AI compared to KNFB Reader. She adds another text-to-voice app NaturalReader
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 1/2/2018
I asked Sue to check out the new version of Microsoft’s Seeing AI. In this first page of the series, she tries the light perception and color identification options. Since she also has KNFB Reader, she compared Seeing AI’s short text option to a similar feature of KNFB Reader.
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 12/28/2017
With all the stress she’s had, Sue is sick. I’ve asked her to look at the upgrades to the app Seeing AI from Microsoft but first she is taking her mother’s advice on how to get rid of her infection which was to…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
Sue’s New Page 12/24/2017
Sue writes “I know none of you fine people ever feel sorry for yourselves, but bear with me while I work through this; OK??” She gives us a pep talk and concludes that she can do this one more time…
Spoiler Alert – why should you read Sue’s Journal Pages?
After a year of learning how to deal with her visual impairment both physically and emotionally, Sue has a rather ‘normal for her’ life: At age 64 and with advanced AMD geographic atrophy, she works several jobs, attends regular exercise classes, rides her bike safely, travels, walks her dog, kayaks, attends social events with her friends. We are not suggesting that reading her journal will ensure you the same results but we hope that Sue’s Journal of Her Journey will be educational and inspirational.
We’ve compiled the first part of a series of Sue’s Best Pages. If you don’t think you are ready to tackle all 500 of them, here’s our suggestion of where to start.
My Macular Degeneration Journal 