Sue wrote this in November of last year, a year that included one of her ‘unlucky’ numbers. When she lists all the things that went wrong, it seems that she’s not had much help from…
Category: Sue’s New Page
Sue’s New Page 4/1/2017
Continuing on the theme of retirement, Sue talks about what to do with your time.
Sue’s New Page 3/31/2017
Sue’s New Page 3/30/2017
In our parents’ generation, AARP (American Association of Retired Persons) would ‘find’ a person when they turned 60. In our generation, you felt old when they ‘found’ you at age 50 so it’s not just for retired people. Sue talks about this organization and about retirement, in general, whether it is forced or voluntary. Plus she found a good article in AARP’s magazine about…
Sue’s New Page 3/29/2017
What do a ‘bionic eye’, gut microbes, and the complement activation system have in common? Sue’s written about them in this page! ::grin::
Sue’s New Page 3/28/2017
Sue and many of you have Age Related Macular Degeneration (AMD) where the word ‘age’ brings its own set of issues such as depression.
Sue’s New Page 3/27/2017
If you’ve been with us long enough, you know that Sue and I are both educators who place an emphasis on finding and sharing accurate information. It’s no wonder that Sue reacted as she did to this…
PS If you ever find something on our website or in our Facebook group that you question or know to be inaccurate or misleading, PLEASE LET US KNOW!
Sue’s New Page 3/26/2017
What was your reaction to your diagnosis? Sue shared that she had panic attacks when she realized that her vision was worsening. Sue talks about emotional regulation and what it means to you and the people around you.
Sue’s New Page 3/25/2017
One of the challenges Sue’s had since her vision deteriorated is that of getting transportation. Some of her drivers are easier to deal with than others & that’s where she tells us…
Sue’s New Page 3/24/2017
Sue has talked about some of the smells that take her back to her childhood (eg, Vicks VaboRub is one). In this page she talks about another that relates to a hobby her dad had (as did mine), one that surprisingly a person can continue even with impaired vision.
Sue’s New Page 3/23/2017
Moving through the process of declining vision is like going through the stages of life. When we began this project, Sue was an infant who was given ‘toys’. She’s learned to use them and says…
Sue’s New Page 3/22/2017
When it comes to our eyes, we want to know that we are receiving the best possible care. Sue tells us about an article in US News that ranks the Best Hospitals for Ophthalmology in the US. This article also lets us search for the best doctors, hospitals and children’s hospitals for various specialties.
Sue’s New Page 3/21/2017
In her second (and final) page, Sue talks about the phases of clinical trials and what to know about each one.
Sue’s New Page 3/20/2017
Yesterday Sue talked about the difference between a legitimate, scientific clinical trial and one that is not. Today she gives us a short lesson in what to look for in the legitimate ones.
Sue’s New Page 3/19/2017
By now, we’ve all heard this week’s news about 3 women being blinded by questionable stem cell ‘treatments’. Sue is waiting for a ‘real’, legitimate stem cell clinical trial and she writes about the difference between the two.
Sue’s New Page 3/18/2017
Sue wrote this page last December about how the reports of stem cell treatments have turned them into modern ‘snake oil’ (ie, treatments with questionable or unverifiable benefit). We decided to move it up for publication because of the recent news report about 3 women who were blinded by stem cell treatments.
Sue’s New Page 3/17/2017
Happy St. Patrick’s Day! This is a page Sue wrote for Mardi Gras and she mentions St. Patrick Day, both holidays with rich traditions.
May your troubles be less and your blessings be more
And nothing but happiness come through your door
Sue’s New Page 3/16/2017
Sue gets as excited about the MaxiAids catalog as she did with the Sears toy catalog when we were young!
Sue’s New Page 3/15/2017
Having a disability is expensive in terms of health care costs, interruptions in time on the job, expense of assistive devices, etc. It pays to check out the resources that are available.
Sue’s New Page 3/14/2017
Are there preconceived notions about the happiness and capabilities of those who are blind? Yes! It’s up to us to teach others. Instead of being part of the problem of misconceptions, be…
Kvetch, Kvetch, Kvetch
Kvetch. Kvetch. I feel like complaining. it was one of ‘those days’. There was craziness with the van schedule and then the driver decided to take the ‘scenic route’ to school. I saw parts of the county I have not seen in years.
Then my friend with whom I walk and who drops me off for yoga had to cancel. Then my ride home from school had to unexpectedly take her son to the doctor. Just scrambling all day long. Plan B. Plan C. Plan D. Thank God I have options but it was still aggravating!
So, I decided to write this page on the fine art of bitching. Never knew it was an art? Allow me to complain….er, explain.
Complaining, when done properly, has some real positive outcomes. Robin Kowalski of Clemson University has been studying complaining and she pointed out some of the most basic, positive outcomes of complaining are sympathy and attention. I had a mini pity party outside my office when I got to school today. Two of my colleagues sympathized and laughed at my van misadventure. Felt better.
Complaining can be cathartic and provide emotional release. Another researcher, James Pennebaker from the University of Texas has studied complaining through journaling and found it improved the mental health of people who had experienced a traumatic event. He hypothesized the complaining helped to focus and organize the traumatic experience so it could be better dealt with.
Conversely, those who hold their concerns inside can experience negative consequences. Chronic stress and related health problems can be the result.
Some people use complaining for impression management. You know: “it is so damp in the Hamptons this time of the year! I think I will have the staff prepare the jet and go to the Palm Springs house.” Don’t you just love those people? Their complaints get their point across, though. I am used to better than this!
Kowalski pointed out complaining should have a purpose. People who complain with the hope of achieving a result are actually, on the whole, happier people. She also found people with higher self-esteem complain more, possibly because they have had some success with their complaining.
Kowalski set out a few guidelines for effective complaining. It is important to know when to complain and whom to complain to. The most effective types of complaints take place when the complainer uses logic and facts. He has an idea of what his intended outcome is and he is complaining to someone who has the power and authority to make the changes.
I have to admit my primary reason for kvetching all day was to vent. Can’t do anything about sick secretaries or sick kids. There were no ‘intended outcomes’ for my complaints there. I just felt like I was being pecked to death by ducks and I needed some sympathy.
And you know what? That’s okay, too.
Where was I? Oh, yeah, and THEN do you know what happened? Really!?!… Continue reading “Kvetch, Kvetch, Kvetch”
Sue’s New Page 3/13/2017
What does Bingo have to do with altruism? Read on…
Sue’s New Page 3/12/2017
One of the concepts that Sue uses and teaches is mindfulness. Basically it means to focus not in the past and not in the future but in the…
Sue’s New Page 3/11/2017
Sue hadn’t written for a few days which got her thinking about how living with a chronic illness like AMD often has a period of high anxiety and frantic activity followed by a period of relative stability. Not that her eyes have gotten any better, she’s just called…
Sue’s Journal Pages February 2017
February 2017
- 193. Can An Old Dog Learn Braille? added 2/1/2017
- 194. I Am Woman, Hear Me Roar added 2/2/2017
- 195. Leaving on a Jet Plane added 2/3/2017
- 196. SightSEEing added 2/4/2017
- 197. Travelogue: Iceland added 2/5/2017
- 198. Memories added 2/6/2017
- 199. In the Groove added 2/7/2017
- 200. Face to Face added 2/8/2017
- 201. Staying in the Game added 2/9/2017
- 202. From the Sickroom added 2/10/2017
- 203. My Daddy and Me added 2/11/2017
- 204. Need to be Needed added 2/12/2017
- 205. Taking Time added 2/13/2017
- 206. Lamp Stuff added 2/14/2017
- 207. Taking Care of You added 2/15/2017
- 208. Fairy Tales added 2/16/2017
- 209. You’ve Got the Look 2/16/2017
- 210. Reading Speed NOT Speed Reading 2/17/2017
- 211. Opening a Window added 2/17/2017
- 212. Reset Button added 2/18/2017
- 213. Salmagundi added 2/19/2017
- 214. Song of the Lark added 2/20/2017
- 215. Four Letter Words added 2/21/2017
- 216. Illegal, Immoral or Fattening added 2/22/2017
- 217. Power of Prayer added 2/23/2017
- 218. Online Shopping added 2/24/2017
- 219. Happy 1st Birthday, Website! added 2/25/2017
- 220. Mess of Topics added 2/26/2017
- 221. I Am Not a Doctor added 2/27/2017
- 222. Hope added 2/28/2017